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Treatment after prostatectomy

Prostate Cancer | Last Active: 6 days ago | Replies (26)

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@clubits

Wow..that is amazing. Now I’m wondering if we shouldn’t have had it even removed. He too had a Gleason of 9. Doc here pushed for the surgery and told us it’s a “no brainer” for treatment, because we were hesitant. I said no brainer for you doc, but we don’t know shit about any of this. Then when the decipher came back at .99 he was very insistent. I’ll call Mayo on Monday again. Will be my 3rd time. Feels odd to have to beg to be seen by them. Thanks for taking the time to reply. Appreciate it.

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Replies to "Wow..that is amazing. Now I’m wondering if we shouldn’t have had it even removed. He too..."

Clubits, you are going thru a lot here with frustration and anxiety to boot. It is a very difficult time.
But please know that your decision for prostatectomy was the correct one! With his Gleason/Decipher scores, it HAD to come out - it was a no brainer, in the words of your surgeon and the right call.
He is now on Orgovyx - another no brainer as it immediately arrests the production of the testosterone which is feeding the remaining cancer. So, so far, all is good as far as your treatment decisions - you have done all the right things so please don’t fret needlessly about that.
Radiation is next - as it usually is in these cases; it will probably be 25-39 treatments depending on the radiologist’s preference. They are all basically the same, in that they attack any cancer cells which have escaped the prostate.
Once radiation is completed your husband will monitored by blood tests every three months or so to check for any changes in his PSA.
He will probably remain on Orgovyx for at least a year or possibly longer.
All of this treatment and ADT does take its toll on a person; we always encourage vigorous exercise while taking ADT but working in a steel mill doesn’t seem to lend itself to a gym routine. My father was in construction and the notion of him “working out” after a grueling day is almost laughable.
But try to encourage a healthy diet, let him nap because naps are restorative and try to get him outdoors for walks on the weekends.
You are both on an arduous journey - physically and mentally so get whatever help you need there as well; so much depends on your husband’s mental outlook - and yours!
Best to both of you,
Phil