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DiscussionLiving with cytomegalovirus (CMV) after liver transplant: Anyone?
Transplants | Last Active: Apr 19 10:38am | Replies (19)Comment receiving replies
Replies to "Thanks Rosemary. The Mayo Arizona Transplant team Nurses are great. One or two are assigned to..."
Hi Craig, I also am a transplant Patient. And I also had CMV as others have mentioned. I took Valcyte as a protocall for 6 months as my doner heart had CMV but I had not had it as a child. I went thru treatment for it with valganciclovir 900 MG when it appeared after the 6 month mark after stopping the Valcyte. I took valganciclovir for almost a year and they tried once to take it off at about 6 months of taking it (11 months post transplant) then they took me off it at 1yr 8 months(Aug 2019) and I have not back on it since. Like Rosemay said Im tested every few months for it just in case. So I hope that gives you some hope in a full recovery from it. I also until I read your post had not heard of the side affects possible with getting it. As far as I know Ive had no ill effects from it. BTW my transplant was Jan 2018 so about 5 years since I had it. I like the odds.