1. < Chronic Pain

Confused and diagnosed with fibromyalgia

Posted by whimsicallyinpain @whimsicallyinpain, Mar 27 4:38pm

well i got diagnosed with fibromyalgia at a second opinion doctor. honestly i’m not sure i agree since well i never had issues with pain and i would even say i have a high pain tolerance. i have sprained my (right) ankle so many times i lost count. last time i sprained it i had to be on crutches and on a boot for 3 months which was 2-3 years ago. ever since i’ve had issues with walking, running, standing, anything for too long i get numbness and tingling which is a constant feeling but doing anything with movement makes it worse. my left leg is perfectly fine and doesn’t hurt what so ever. i don’t have pain anywhere else and not sure if this is anything but i have IBS-mixed but i’ve had this issue before the bad sprain.

any thoughts or opinions?

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@seekinginfo | @nrd1 | Mar 30 11:47am
In reply to @sisyphus "I've known someone with Fibro for years and one thing she insisted was that like most..." + (show)
@sisyphus

I've known someone with Fibro for years and one thing she insisted was that like most people those with Fibro are helped with what helps with life-in-general: fit body with daily physical exertion w/some strenuous activity , simple nutritious food, generally positive mindset, and importantly, paying work to feel a contributing member of society if not retiring age, and having a clear Purpose or direction in life. But what I know now (81) is that Genuine Friends are MORE important than general healthcare. I can attest to that with more research/evidence than any other thing in life.

For myself, I don't use any meds, nor did any tests, nor seem my doctor for over ten years and talked only once. I try to walk on uneven surfaces wherever I find such surface and do turns and twists of various parts of the body to keep joints nimble. I think it has helped me to get back up after having slipped on icy sidewalk this winter and being lightly hit by a car over a year ago, And yes, I get my highest pulse rate of over 130 (which is twice my at rest) by walking up ten floors in my bldg.

Life seems to demand little for health if we keep up with what it endows us at birth: curiosity, play, human connection

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@sisyphus -

This couldn’t be more genuine, real and true.

Everything that you wrote is accurate and being that you are 81, I would take your wisdom any day.

There is a generation of individuals that see the humans in the “white coats” as the answers to their health problems, while leaving their intuitive, mind body connection abandoned.

Let’s not forget there is money to be made in healthcare. And an old saying “if you don’t have any problems, go to the doctor, they will find one for you”

REPLY
@seekinginfo | @nrd1 | Mar 30 11:53am
In reply to @gently "seekinginfo, I agree with your text but would add the we sometimes mistake a differential diagnosis..." + (show)
@gently

seekinginfo,
I agree with your text but would add the we sometimes mistake a differential diagnosis for a diagnosis.
There is theory in the research that with that imbalance of gut bacteria with IBS allows toxins to leak into the bloodstream causing the migrating pain of fibromyalgia. Whimsically's doctor is aware of the research https://www.mdpi.com/2227-9059/11/10/2594 and may see it evidenced in their practice. The diagnosis seems whimsical, but could prove a valuable awareness of possible connection.

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@gently -

You have to know yourself best, in and out with confidence, before you ever enter a doctor’s office and communicate with them.

It is a partnership of thoughts and collaboration.

One needs to have an intuitive and confident side about them. And not be lead by a simple guess by another individual in a white coat.

It’s just a fact. As bold as it sounds. It’s fact.

REPLY
gently | @gently | Mar 30 12:48pm

seekinginfo,
at best we would all enter the communication with any doctor knowing more about our disease than they do.
After all we have one or two ailments to deal with and they have more than is possible to keep up with the research on. We have one (sometimes two patients) they have thousands without remembering the names that we never forget.
While I don't see it as bold, I do recognize that the icodeal isn't always the possible.
I marvel at how some of our connectors even manage to sit at a computer.
May pain, memory loss, inability to concentrate, intolerance for sitting, confuision, depression never overwhelm you.

REPLY
gently | @gently | Mar 30 12:53pm
In reply to @sisyphus "I've known someone with Fibro for years and one thing she insisted was that like most..." + (show)
@sisyphus

I've known someone with Fibro for years and one thing she insisted was that like most people those with Fibro are helped with what helps with life-in-general: fit body with daily physical exertion w/some strenuous activity , simple nutritious food, generally positive mindset, and importantly, paying work to feel a contributing member of society if not retiring age, and having a clear Purpose or direction in life. But what I know now (81) is that Genuine Friends are MORE important than general healthcare. I can attest to that with more research/evidence than any other thing in life.

For myself, I don't use any meds, nor did any tests, nor seem my doctor for over ten years and talked only once. I try to walk on uneven surfaces wherever I find such surface and do turns and twists of various parts of the body to keep joints nimble. I think it has helped me to get back up after having slipped on icy sidewalk this winter and being lightly hit by a car over a year ago, And yes, I get my highest pulse rate of over 130 (which is twice my at rest) by walking up ten floors in my bldg.

Life seems to demand little for health if we keep up with what it endows us at birth: curiosity, play, human connection

Jump to this post

Sisyphus,
and good genes. Congratulations you won that lottery.

REPLY
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