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Diverticulitis and Muscular Dystrophy
Digestive Health | Last Active: Dec 6, 2017 | Replies (40)Comment receiving replies
I'd like to add my welcome, @dbwhitted, and thank you for sharing some of the issues that you face. As @hopeful33250 mentioned, you have come to the right place to find support.
Although we don't have anyone who has both Muscular Dystrophy and Diverticulitis, I will do my best to connect you with a few members who have one or the other.
I'd like to introduce you to @gailfaith, @jmbjar, and @nithiyadasarath who have discussed MD. In the diverticulitis group, I'd like to introduce you to @retrebotic, @disfraz1, @allegro, @michellr, @aigimw, @lindainarizona, @wesbig, @user_cha5e73f6, @akogut, and @peterhamilton. I am confident that they will provide some insight.
According to Mayo Clinic, limited mobility in patients with MD can cause digestive issues; you can read more about it here:
http://mayocl.in/1btdmyi
@dbwhitted, what is your biggest challenge living with MD and diverticulitis? What has helped you the most to manage this?
Replies to "I'd like to add my welcome, @dbwhitted, and thank you for sharing some of the issues..."
Well done! May you receive courage and healing in abundance! Patience too plays a part in managing illness as you know only too well. Does following a diet help with your illness?
Mimi
@mimiandant diet is a big issue when considering regular bowel movements. I attempt to stay away from greasy, spicy, ruffage, etc. foods eating mostly grilled, baked, broiled foods, that being said, I'm on no particular diet. I only take careful precautions over my 'cravings' taking the outcome as my primary focus. One thing I've noticed is I must stay away from is black pepper (mainly cracked peppercorns), corn, oats, etc...I stay away from fresh/uncooked vegetables.
My BIGGEST change has been hydration...water, water, water! As mentioned, every time I attempted this my urine output was excessive, with my busy schedule was difficult, but my body adjusted after 3-5 days.
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@kanaazpereira First thanks for your kind welcome, many introductions, & link, which I'll read shortly.
As for your questions...
Question #1:
"what is your biggest challenge living with MD and diverticulitis?"
Answer:
I consider my lifestyle fully active, in fact, up til Christmas '15 I worked 35-40hrs/wk, getting in my wheelchair about 7am where I remained until approx. 8-10pm. Then & now, my biggest challenge drinking plenty of water because it flows right through me, biggest issue is the constant seatbelt pressure across the lower abdomen where the diverticulitis is, plus the natural compaction of the seating position. When the pain comes, the jarring of the lack of wheelchair suspension creates more pain. Then there's the not being able to quickly get to the toilet when it hits (I can't use any toilet there must be a lift system).
Question #2
"What has helped you the most to manage this?"
Answer:
Outside of place my trust in God....I'm still looking! Insurance doesn't allow me to see a dietary physician. I'm looking into homemade kraut w/ its natural biotics, as well as, turmeric. I certainly stay away from fresh vegetables & absolutely no corn!