Post COVID: Anyone experiencing internal vibrations?

i have the same symptoms. it does improve with time. mine started in 2022. it is still with me.

I appreciate the term "like an entity moving through me". Exactly. I've had this disorder for over two years and it is constantly mutating and impacting different systems in my body. I don't even remember all my symptoms.

I appreciate what we can all share on the connect forum. In my description “entity” it’s as though this “thing” has a life of its own. But then again, virus’s while not considered “alive”, they survive and replicate within a living host. The covid virus is still a mystery to a large extent and is being studied extensively.

Hi I had the same thing get hot an cold an big vibs, while sleeping found out thought my fitbit watch that I have AFIB all hanks to covid but getting better hope this helps

Just ran across this thread and FINALLY found people who understand. I get the vibrations pretty much every morning. I've determined that big/late meals, alcohol, and intense evening workouts are triggers for the worst symptoms. By worse I mean I have made the ER trip for possible heart attack only to find out I'm in perfect health. Other times I thought a heart attack might be real this time but didn't go to the ER b/c I'm self insured and those get costly.

Those triggers are all eliminated and now is just that stupid buzz 95% of mornings. It's kind of like the movie Groundhog day. Sometimes I guess I live a perfect day and get no vibrations. But I have no idea how to repeat the day every day (and won't go crazy trying).

All that said, I don't recall being ill before this all started. I am "one of those people" who never took COVID tests just because being ill has never been a problem for me. Really healthy other than this.

So, how would one know this is a long COVID thing other than guesswork?

It is God awful, isn’t it? I have the “brain fog” and post exertional malaise, rashes and hives and this constant internal vibration. Sometimes they are not as noticeable but they are 24/7. I think that mine didn’t start until I received the vaccine but I’m not sure because for a long time, I believed they were external and I kept trying to figure out what the heck was vibrating! It’s like a low vibrational buzz or hum passing through me. No trembling if I hold my hand out or anything but it keeps me awake at night.

Internal buzz-tremor since two weeks after Paxlovid following my second bout of covid. Doctors attributed this to accumulated spike proteins from combined covid 2020 and 2024, severe reaction to Moderna vaccine, and to Paxlovid. All raise spike protein. It started in just my trunk waking me up at night. Now sometimes full body, and face, all day. You can't see it. Docs dont know what to do - waiting for the science to catch up. And I can't take any more vaccines again ever, or paxlovid.

Found this great article on internal vibrations - mine are usually centered around my chest and are not terribly bothersome. Looks like prescription low dose Naltrexone might help. I am started it as soon as the compounding pharmacy gets it to me:
https://www.yalemedicine.org/news/long-covid-symptoms-internal-tremors-and-vibrations

I'm using naltrexone at 6mg/ day, dramatic difference with pain and fatigue from taking 4.5mg/day. Also a platinum red light panel 20 min daily, and strict pacing with a neuro PT. Also anti inflammatory supplements. All feel critical to improvement of pain and fatigue. Grateful for that, the pain was horrendous. Nothing yet has helped the buzz-tremor.

4 days after getting the vaccine I became suddenly ill. Lost vision in my left eye briefly, headache, woke up in the morning with acute vertigo, dizziness, difficulty speaking, blurred vision, internal tremor, electrical malfunction through my body down arms and legs. Balance issue, visual issue and brain buzzing, brain fullness, tinnitusy sensation so extreme I would have daily crashes of sleep with all these symptoms at once. I began falling asleep and waking up with this horrible internal tremor with also low grade fever. I lost my ability to talk properly, trying to get words out in a sentence became difficult. Word finding, memory trouble. Went from working out at orange theory and going for 5-10 km runs to having to hold onto my husbands arm for support when walking. I had heart palpitations even lying down and when walking even on a flat surface. I also got a weird rash that came and went. I had a litany of overwhelming symptoms that was difficult to describe. If you can imagine my GP told me my sudden onset illness wasn’t vaccine related and encouraged me to take the second one a couple of months later despite the fact I hadn’t been able to return to work because of how sick I was. All the specialists assured me the vaccine was safe and effective. So got the second one based on advice and within 24 hours I was in an ambulance with severe chest pain, sweating profusely and feeling sick and nauseous. Given nitro under my tongue and the attending denied my symptoms had anything to do with the vaccine. Chest X-ray appeared normal so I went home. It has been 4 years of hell. I’ve never been able to return to my career. I to this day wake up to a horrible internal tremor vibration and tinnitus- brain fog feeling. Often with stiff hands and arms- like muscles are flexing. I try to go for a walk but even this morning I got bad vertigo/dizziness with tinnitus and had to come home. I crash with these symptoms everyday. After the first year I was dx with MECFS- I had worked in healthcare for 23 years and had never heard of this. It sounded like a partial fit to my symptoms but did t explain all. The term ‘brain fog didn’t feel exactly right compared to my symptoms but I struggled to describe what my brain felt like. Also didn’t explain the tremor, daily swollen neck glands, on and off rashes on my legs arms chest and face, fevers, trouble talking and reading. The pain came on last year when the neurologist took me off Amitryptiline which I had been taking for 6 years for migraines. I had begun falling and feeling neuropathy in my fingers and legs. At one point my legs became so heavy one morning I couldn’t move them. Stayed like this all day to the point I went to ER. Neurologist took me off the amitryptaline and within two-3 weeks my heavy legs, neuropathy and falling for no reason improved. I get neuropathy now and then but way more manageable. I was also dx with MCAS at the same time. I have also now been recently dx with Lupus SLE and Sjogren’s. This is in Jan 2025. In 2022 I was dx with a positive ANA showing Sjogren’s the Rhumatologist had me spit in a cup and said I had too much spit so didn’t have sjogren’s. I had also tested positive for Lupus Anticoagulant but they assured me that ‘healthy people can have a positive test’…..huh? Except I wasn’t a healthy person. Another 1.5 years go by and I’m suffering daily. I begged my GP to send me to a new Rhumatologist who in Dec 2024 sent me for more tests. I’m losing my hair by this time and losing weight for no reason, can’t exercise because of PEM and crashing. My muscles look like their wasting and I’ve got these indentations now in my arms, wrists, hands and legs and ankles and since coming off the amitryptaline I have pain like I’ve never had. I found out in January 2025 I have Lupus SLE. My speaking improved but have a hard time reading and concentrating. I fall into a terrible crash. I have started on Plaquenal but afraid to go on Prednisone. I’ve been on Paquenal for 9 weeks and it has taken the edge off the pain but not enough. I have pain in my legs, forearms and knuckles in my hands. The worst pain is in my rib age and when I breathe in my back and side ribs hurt. The pain will go from one place to another within hours. Because of the vaccine, I have never recovered. I struggle everyday and I’m so disappointed in the medical community who have not provided the care that I need. The care starts with being honest about how the vaccine can do this to someone. If research isn’t done than I don’t have a future. The denial and gaslighting I’ve endured for the past 4 years has been almost as painful as my illness. It didn’t have to be this way. But it added a whole other hurtful and impactful, stressful layer that has caused double harm. I’m exhausted and fight everyday to keep going and try to stay hopeful for a future but it’s hard, especially when I dread going to sleep and waking up with this terrible tremor that no one has an explanation for. Is it spike in my brain? In my body? In my CNS? Not a question my GP or any of my doctors can answer. Nor do they have any interest in answering. This is the most isolating illness I’ve ever experienced. No support whatsoever unless I jump into a Long Covid chat . Thank you 🙏 Tracy