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Living with cytomegalovirus (CMV) after liver transplant: Anyone?

Transplants | Last Active: Apr 19 10:38am | Replies (19)
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@craigcraig

Thanks Rosemary. Was diagnosed a few weeks back. Bloodwork for my 1 year call with Mayo.
Never had it on weekly blood draws, then a low (load is it called ? )of under 100, then it went to around 850 and I go again Monday. I still do a weekly blood draw as I have the past year. Mayo's , Cleveland Clinic's and Pub Med websites all describe possible very bad outcomes for transplant patients with CMV but no hint anywhere are they common, rare, in between ? Thanks for your encouragement and advice. Have a great weekend.

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Replies to "Thanks Rosemary. Was diagnosed a few weeks back. Bloodwork for my 1 year call with Mayo...."
Rosemary, Volunteer Mentor | @rosemarya | Mar 30 10:53am

Your response, demonstrates the importance of our routine labs and an annual check-up with our transplant team. A CVM lab is part of my annual check-up and throughout the year, I do contiunue with my routine labs. One thing that I have learned to appreciate is that the team at Mayo, keeps close check on any changes in routine labs to be on the alert for anything that could indicate a potential problem - before it becomes a serious issue.

I think your team is doing the best for you, because your CMV is caught early, before those scarey side effects can develop. And that, along with the weekly blood draws give you the advantage! Have you shared your concerns about potential side effects with the transplant team? If you do not see them in person, I suggest that you contact your transplant nurse via the patient app and tell her/him your concernd and questiond just like you did here on Connect. What are your thoughts about messaging your nurse?

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