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Replies to "@craigcraig, Here is a discussion where other members have shared their experience(s) with CMV. I encourage..."
Transplants | Last Active: 1 day ago | Replies (9)
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@craigcraig, Here is a discussion where other members have shared their experience(s) with CMV. I encourage you to start at the beginning, and read what they have to say. And you are welcome to jump into the conversation at any time! (Mentor TIP - If you want to direct your comment or question to a particular individual, include their @name .
- CMV positive what now?
https://connect.mayoclinic.org/discussion/cmv-positive-what-now/
I have no experience with CMV, but do remember being on Valcyte after my transplant surgery. How long age were you diagnosed with CMV? How was it discovered-did it show up in labs? How is it monitored?
Replies to "@craigcraig, Here is a discussion where other members have shared their experience(s) with CMV. I encourage..."
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Thanks Rosemary. Was diagnosed a few weeks back. Bloodwork for my 1 year call with Mayo.
Never had it on weekly blood draws, then a low (load is it called ? )of under 100, then it went to around 850 and I go again Monday. I still do a weekly blood draw as I have the past year. Mayo's , Cleveland Clinic's and Pub Med websites all describe possible very bad outcomes for transplant patients with CMV but no hint anywhere are they common, rare, in between ? Thanks for your encouragement and advice. Have a great weekend.