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Have anyone had a radiation therapy for Brain AVM?

Stroke & Cerebrovascular Diseases | Last Active: 1 day ago | Replies (4)
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@samanthacarlisle1983

I am in my 40's and I am very scared at this point. I HAVE A VERY RARE blood Vessel disorder. Osler webber rendu
And I've known about my AVM
but was stubborn headed to get it taken care of but I have 2 kids and my body is falling apart Dr's used too tell all the time with most people that has this disorder that I was among the ones that was the healthiest and now I just had my MRI done since 2014 and they used too want to do surgery before but after reading your comment I am terrified. I'm so sorry and I will be praying for you. Please private message me on Mayo Clinic Connect.
Please keep in touch with me too let me know what you decide but in the mean time just know I AM PRAYING FOR YOU. Sam

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rubyruru | @rubyruru | 1 day ago

Thank you for reaching out to me, Sam. I’m so sorry to hear that you’re dealing with such a rare condition and an AVM, but I’m glad to hear from you, and I really appreciate your kind words.

As for my AVM, I’ve decided to seek a second opinion. My neurosurgeon is a wonderful doctor—he actually encouraged me to do so and even gave me names of other neurosurgeons.

In your case, I assume your doctor has told you they can operate and remove it with confidence, right? If so, I would go for it if I were you. Don’t be scared—your beautiful children would be so happy to see you healthier!

I’m praying for you, too!!
Ruby

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