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ET progression if all blood cells are increasing?
Blood Cancers & Disorders | Last Active: 5 days ago | Replies (20)Comment receiving replies
Thanks all. This is a great group! I have been on the MNP listserv but didn't find that too helpful for me at least with ET and my stage. I am feeling better with breathing, the two extra HU brought my blood cells and platelets down so maybe that was the issue. Pulmonologist checked things out and saw no serious issue on his end. My white cells however are still going higher and I am in incredible back pain and with some sciatica. Whatever is going on there may be causing the white cell increases, i,e, inflammation. I have had back issues most of my life with degenerative disks etc. but never to this extent and for so long. Back Dr. Thurs. but will take weeks to get an mri approved I am sure.
I am grateful that for over 3 years my ET was stable and I didn't have any side effects that I could relate to it except some fatigue. I guess the 'honeymoon' is over.
Lea/ET/63
Replies to "Thanks all. This is a great group! I have been on the MNP listserv but didn't..."
"Feeling better with breathing" -- it's great to hear that! Good work, getting your platelet count down!
I am so sorry about your back pain. When your back hurts, life is really tough.
Have you ever tried lidocaine patches? They can give hours of relief. Lidocaine is absorbed through your skin, and doesn't interfere with either aspirin or HU. I've been assured by an oncology nurse that it's safe for me to get pain relief this way.
I was born with a little part of my spine missing. Swimming has been my lifelong salvation. Is there a Y in your community with a pool? Even if you just walk around in the water, it can feel so good. And maybe your Y will have a jacuzzi!
I have had ET for 12 years with no problems but started HU one month ago . I have back issues , leg pain & a rash, I go 4/1 for lab work & I hope all is good . Oh by the way I am 82
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Really glad your pulmo gave you the all-clear! Hope they will get a handle on white count soon. Back trouble is such a drag. I have severe scoliosis. Physical therapy gave me some good guidance about maintenance routine to keep the worst at bay. I used to get get good temp relief with massage. Hoping they can find some noninvasive relief for your sciatica.