Hello @taf and welcome to the NETs support group on Mayo Connect. I can understand your concern about the watch and wait approach. It does create a lot of anxiety.

There are many members on Connect who also have NETs on the pancreas. Here is a link to many of their posts, https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/?search=NET+on+pancreas#discussion-listview. I would encourage you to read these posts and see how others are responding to treatments. Feel free to post to any member by clicking on "Reply" or "Comment" below their post.

How are you feeling? Is your blood sugar affected by this tumor on your pancreas?

Hello, I'm very sorry for what you're going through. My wife have been through it. A grade 3 well-differentiated neuroendocrine tumor. No metastases or infiltrated lymph nodes. My wife's tumor was functional; it produced ACTH, which produced excess cortisol, causing Cushing's syndrome. She underwent tumor enucleation on March 4, 2024. As of today, she is disease-free. Yesterday, she had follow-up CT scans, and the reports all came back normal. I'm not a doctor, but I encourage you to discuss all your doubts with your medical team. Ask if surgery is an option for your case. What type of tumor you have. What is causing that tumor? Remember that the golden rule for a cure is surgery when possible. I encourage you to ask your doctor all the questions you think are necessary. I wish you the best of luck on this journey. I hope you understand my English. I wrote it using Google Translate. I write in Spanish.

Hello Everyone Has anybody ever had a Small bowel resection and whats the recovery like.

Hi @taf, I'd like to add my welcome. I can understand your concern about the watch and wait approach. It's unnerving because it feels like nothing is being done. Sometimes, with slow growing tumors, waiting is the right approach. I prefer to call it active surveillance which more closely aligns with the careful monitoring your team will be doing.

To help you connect with others who have taken the watch and wait approach with NETs in the head of the pancreas, I moved your question to this related discussion:

- Just diagnosed with PNET: Any thoughts on watch & wait approach? https://connect.mayoclinic.org/discussion/just-diagnosed-with-pnet/

I did this so you can click the link the read previous posts and connect with members like @vtn @tomrennie @smt @elm60 @kim1965 @pavlina60

You might also be interested in this discussion that @pamsbass started:
- Need more information on NET in head of pancreas https://connect.mayoclinic.org/discussion/need-more-information-on-net-in-head-of-pancreas/

@taf, have you told your oncologist how you feel about watching and waiting? Were they able to put your mind at ease?