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Replies to "Hello I have just been diagnosed with CLL and would like to see posy on that..."
Blood Cancers & Disorders | Last Active: Apr 2 1:32pm | Replies (14)
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Replies to "Hello I have just been diagnosed with CLL and would like to see posy on that..."
Welcome to Connect, @cal1960 Chronic lymphocytic leukemia (CLL) is a form of non Hodgkin’s lymphoma, generally slow to develop and not uncommon for treatment to be delayed. I know, just hearing the word leukemia can be frighting. But the good news is that CLL, statistically, remains one of the more treatable types of leukemia.
You’re looking for positive reinforcement! ☺️ This post by @gardeningjunkie is one of the most encouraging stories of CLL. She was diagnosed with CLL over a decade ago and with no treatment, the disease has spontaneously regressed! Here’s her story:
https://connect.mayoclinic.org/discussion/cll-spontaneous-regression/
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As @janemc suggested in her reply to you, more discussions can be found by simply typing in CLL in the top search bar.
To get you started, I’m posting some links below for you to read through. I think you’ll find them informational.
However, remember that each of us has our own, unique story. You may all be sharing the same diagnosis, but there can be differences in treatments, when to treat and response to treatments, etc. But the replies and the article links in the comments will give you a better understanding of CLL.
Here are the links to replies or discussions:
~Diagnosed with asymptomatic CLL 6 years ago; Starting to have symptoms. With member, @tatayababa and others.
https://connect.mayoclinic.org/comment/815368/
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~Non Hodgkin's Lymphoma- Watch & Wait Approach
https://connect.mayoclinic.org/comment/1042622/
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Another discussion:
Just discovered I have leukemia:
https://connect.mayoclinic.org/comment/1043133/
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One more…this discussion with @joeeduffy whose husband was diagnosed with CLL a few years go.
https://connect.mayoclinic.org/comment/1007740/
Feel free to pop into any of the conversations and ask questions! Are you in active surveillance or has your doctor suggested treatment?