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Replies to "Yes , I have ET"
Blood Cancers & Disorders | Last Active: Apr 2 1:32pm | Replies (14)
Comment receiving replies
Replies to "Yes , I have ET"
Hi @shree, I know you are concerned that most of the discussions you’ve found on ET are older. The date on the initial posting of the new discussion might be dated, but as I mentioned before, many conversations are quite active. It’s nice to keep the threads ongoing so that there aren’t so many new discussions repeating the same information.
Now that I know you have ET, I’ve taken the liberty of pulling some of the more recent discussions for you. You can pick and choose:
Essential Thrombocythemia: Making treatment decisions with @mamsgirl1998 @0612judy @debhammel and fellow ET members
https://connect.mayoclinic.org/discussion/essential-thrombocythemia-4/
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~Need help-newly diagnosed with a high platelet count and the JAK2 gene! With members @nohrt4me @janemc @eileen11108 @lindagualtieri and many others.
https://connect.mayoclinic.org/discussion/need-help-newly-diagnosed-with-a-high-platelet-count-and-the-jak2-gene/
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Particularly helpful this comment by @nohrt4me with suggestions questions to ask a MPN specialist if you’re newly diagnosed with ET. https://connect.mayoclinic.org/comment/1146120/
A few more links with informative replies:
How to manage the side effects of hydroxyurea https://connect.mayoclinic.org/discussion/side-effects-of-hydroxyurea-et/
Would you might sharing a little more about yourself? Are you currently taking any medication such as Hydroxurea to control the platelet level? Were you told about any specific genetic mutation such as JAK2 or CALR which is behind your ET?