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Dr wants to add immunoglobulins
Over a year with Waldenstroms diagnosis. They now think I’ve had it much longer On Ruxience, prednisone and Imbruvica. Igm coming down too slowly but igg almost non existent. Dr got ivg approved. Side effects? Is it given with since operate. Hoping to take a trip next month to see first great grabby but that may be off. Is therevfunding available for procedure? So tired not sleeping
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I have had immunoglobulin infusions every 4 weeks for some months, due to my CLL. Plan to be at the infusion center for several hours (that was very unexpected to me). To help alleviate side effects, they give you Tylenol and an infusion of Benadryl. The Benadryl can burn, so it should be infused very slowly. Once they start the IVIG, they also infuse that slowly. With me, they increased it at 30 minute intervals (hence it taking several hours totally). After several times, they were able to change the interval to 15 minutes. I fortunately had no side effects, other than bruising all over my arms (I am told I am a 'hard stick', so it generally takes several tries). Since I am on blood thinners for my AFib, my bruising takes a while to go away. Other side effects of IVIG can be headaches or nausea, but I don't know how common that is. Be sure to be well hydrated; they generally also give saline along with the immunoglobulin. I found this link that may give you more information: https://www.uptodate.com/contents/intravenous-immune-globulin-ivig-beyond-the-basics.
I don't know about funding. My guess is that each manufacturer of the product used may be able to help. Good luck! Go see that first grandbaby!
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4 ReactionsThanks so much for taking the time to get back to me
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2 ReactionsPlease teach me the true meaning of :: igm, igg, ivg, CLL, IVIG, AFib.
What are these items? What for?
Which one to use for increasing Platelets to the Low Normal Value of 150 K counts per cc?
Any supplements, nutrients, foods for daily consumptions to raise my platelets? Please advise and share your knowledge. Many grateful thanks to you and to Mayo Clinics..
Not being a medical professional I am pretty much as confused as you. I do know that IGG protects the immune system and mine are pretty non existent with Waldenstroms at this point and starting immunoglobulins tomorrow to replace them I think.also Igg is part of the immune system. My Igm spike is high and was part of my blood cancer diagnosis. Adult is arterial tribulation or irregular heartbeat. Sorry I couldn’t be more help. Do you have a blood cancer?
Going this morning for first immunoglobulins fusion. Chemo next week. Will,let you know how it goes. Supposed to take about 4 to 5 hours🙂↕️
I have had IGg for almost a year - non existent too essentially. No reaction - the 3 pre meds important!! And it’s made a difference! Rest of my life. I have another IV. Each month ( biogenic for RA) so I got a port ! So much easier tho not everyone does them. ( most fusion places do). I can only use one arm too ( breast cancer mastectomy) so my right arm veins were shot! Consider it!
Will do! Thank you
I wanted to add that my nurses recommended drinking coffee afterwards. My sister and I would go out for a meal when my infusions were done and a big cup of Joe was always ordered!
Laurie
Hope it went well. I get IGG regularly without problems. It really is amazing to think that 1000s of people donated to allow for each infusion. I try to send out my gratitude to them each time I get it. Good luck w chemo!
Other than bad headaches and bad tummy all night I. Feel a little better this morning. Just my usual fatigue. It is amazing so many people are involved in this medication. I pray relief is around the corner . And I am so thank fulmformallmof you! What a shame we have to work so hard sometimes tomgetmthencare we need😌. But grateful for every day.