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Idiopathic Small Fiber Neuropathy Research
Neuropathy | Last Active: Mar 29 10:12am | Replies (141)Comment receiving replies
Ray, thank you so much for your posting. I have not heard of EB-N5, so I need to discuss that w/ my neuro. Not eager for a 2nd EMG, though 🙂 . I have Small Fibre PN. You are blessed that it seems to have been stopped in its tracks... but of course we all hope for a return to normal feeling. My balance isn't too bad, but I hate the feeling of walking on bubble wrap!! Blessings and all good wishes for full healing... Diane
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Good morning, drdianeschneider (@drdianeschneider)
Nor did I look forward to a second EMG, but my neuro strongly advised, and once I'd had it and heard the neuro says he saw little or no progression, I was delighted I'd consented.
"Walking on bubble wrap … " What a perfect way of describing what poor balance feels like! A few years ago, my partner and I gave up our mountain cabin because our outhouse was a "short" forest walk from the front porch. Traveling to and from the outhouse, especially at night (and often with some urgency 🙂 ), was just like you say: hiking on "bubble wrap"!
Cheers!
Ray (@ray666)