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Myectomy Needed

Hypertrophic Cardiomyopathy (HCM) | Last Active: Mar 30 6:47pm | Replies (29)

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@bwburchette

I was in the hospital for 5 days. Had my surgery on a Wednesday and discharged on Monday. Fortunately, had no postoperative complications. We ended up staying an additional 5 days in Rochester before flying home. We stayed at the Berkman Apartments- across the street from St Mary's Hospital. They informed us that they reserve about 80 units for patients from St Marys. Our 2 bedroom apartment was perfect for our needs and allowed my wife a good place to rest at night. They informed us we could stay as long as we liked as long as we kept them in the loop regarding anticipated departure date.

Regarding recovery, it depends how you define recovery. Although I had fairly pronounced fatigue for a few weeks, I can honestly say that I saw some day to day progress from the beginning. You take a few steps postop day 1 and then progress daily from there. By one week from surgery I was walking a total of 2 miles per day- divided over several relatively short walks.
Over time, I reduced the number of walks per day but increased the distance. I was advised not to return to work for 8 weeks. No driving for one month . No lifting over 10 pounds for 2 months. Coughing cause some pain for several weeks and sneezing- avoid at all costs!. I am finally able to sneeze one year our without having much pain.

Don't get discouraged during early recovery. There will be some fatigue and it will not be easy, but know that you will get stronger over time. Do everything they advise you to do. walk and then walk some more. If possible, get enrolled in a cardiac rehab program. I feel so blessed . I am nearing my 62nd birthday and can do things now that I could not do in my late 40s! I have no regrets whatsoever from having gone through this and I hope you will look back with the same perspective soon!

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Replies to "I was in the hospital for 5 days. Had my surgery on a Wednesday and discharged..."

Thank you for sharing your experience, strength and hope. I will look into those apartments because they may be cheaper than an Airbnb. In 2018 I was in a car accident and broke my sternum. Sneezing was worse than labor pains. This site and the people on it are so generous and I am so grateful.

If you dont mnd sharing what is the cost of the appartments? I reserved spring hill suites for june and its $114 per night
I reserved 14 days because they told me to prepare for 10-14 day period
Thanks for sharing ykur info