← Return to Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Discussion
Comment receiving replies
@rogo

I wish you well . It’s been 8 years since my diagnosis. I still go for ct scans one a year and lung X-ray once a year. The word STABLE is my best friend. I had the surgery 1 1/2 years ago. I still cough occasionally but other than shortness of breath I do everything. I walk for miles and travel around the world. I trust that they told me they are very very slow growing tumors. So enjoy life and I wish you well. Please feel free to reach out to me anytime to discuss. You can even call me and talk in person. Thanks Rona

Jump to this post


Replies to "I wish you well . It’s been 8 years since my diagnosis. I still go for..."

Rona
I appreciate your reply. I will be getting my baseline scans and bloodwork in mid May at Huntsnan Labs and then meeting with my DIPNECH Dr. I will reach out when I know what my baseline is. 🩷