Side effects three days post prostate radiation ?

Posted by thitch @thitch, Mar 25 3:49pm

Just finish 35 rad. treatment for raising PSA. I'm also about two month into lupron therapy. Have had the hot flashes, joint pain, diarrhea but manageable. Three day after finishing rad. treatment I feel terrible. dizziness to the point of blackout, nausea, cramps, diarrhea, feels allot like food poisoning which it could be. Anyone have similar side effect post radiation.

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@graybeard46

I like the dump him , looks like you dumped him on the table , I had diarrhea for the whole 6 weeks if radiation sometimes 6-8 times a night , fortunately not bad during the day ? Prescription meds didn’t help , slowly getting back to normal 2 weeks post radiation

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Ya got the fast penguin walk down? Haha

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I was diagnosed over a year ago with Gleason 4+3=7 had all the tests PET, Decipher etc. I have read so many posts on this Mayo site, I have just procrastinated about any treatment. Surgeon said I was not a good candidate for prostatectomy, so that left radiation or something like HIFU, Tulsa Pro etc. All of the treatments seem to have side effects. I turned 71 last October and I am leaning towards no treatment, I would be very happy to make it to 75. I feel great, no side effects or symptoms of any kind from my prostate cancer. My Decipher score was only .35 so low risk of metastasis, my PSA has gone up a bit in the last year from 6.35 to 7.1 but nothing serious yet. I am going to try diet, Ketogenic with absolutely no sugar of any kind, this will starve the cancer cells. In the meantime, I am enjoying life and not stressing over the fact that eventually I will die from it.

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@ranger44

I was diagnosed over a year ago with Gleason 4+3=7 had all the tests PET, Decipher etc. I have read so many posts on this Mayo site, I have just procrastinated about any treatment. Surgeon said I was not a good candidate for prostatectomy, so that left radiation or something like HIFU, Tulsa Pro etc. All of the treatments seem to have side effects. I turned 71 last October and I am leaning towards no treatment, I would be very happy to make it to 75. I feel great, no side effects or symptoms of any kind from my prostate cancer. My Decipher score was only .35 so low risk of metastasis, my PSA has gone up a bit in the last year from 6.35 to 7.1 but nothing serious yet. I am going to try diet, Ketogenic with absolutely no sugar of any kind, this will starve the cancer cells. In the meantime, I am enjoying life and not stressing over the fact that eventually I will die from it.

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Active surveillance is a reasonable response in your situation, but there is no credible evidence that cutting out sugar reduces the risk of prostate cancer progression (cancer cells do feed on glucose, but so does your brain: your body breaks everything you eat down into glucose eventually, so the cancer cells can always get what they need).

There are general health benefits from not eating too much sugar (especially if you're at risk of diabetes), but limiting yourself to a highly-restrictive diet won't change your cancer prognosis. Moderation in everything is the key, so go ahead and enjoy food along with the rest of life.

Best of luck!

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@ranger44

I was diagnosed over a year ago with Gleason 4+3=7 had all the tests PET, Decipher etc. I have read so many posts on this Mayo site, I have just procrastinated about any treatment. Surgeon said I was not a good candidate for prostatectomy, so that left radiation or something like HIFU, Tulsa Pro etc. All of the treatments seem to have side effects. I turned 71 last October and I am leaning towards no treatment, I would be very happy to make it to 75. I feel great, no side effects or symptoms of any kind from my prostate cancer. My Decipher score was only .35 so low risk of metastasis, my PSA has gone up a bit in the last year from 6.35 to 7.1 but nothing serious yet. I am going to try diet, Ketogenic with absolutely no sugar of any kind, this will starve the cancer cells. In the meantime, I am enjoying life and not stressing over the fact that eventually I will die from it.

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@ranger44
Life expectancy is into 80s if you take care of yourself. I am 78 in May. I had prostate cancer at age 76.

I had radiation of 30 rounds of proton at UFHPTI. I did not need hormone treatments because my Decipher test showed low risk.

I agree with another poster that limiting your glucose is questionable. Not sure where you got that information if not from your medical providers I would question that. Your body needs glucose and your organs need it.

The factor that feeds your prostate cancer growth is testostorone. That is where hormone treatments come in. They limit testorone in your system and starves the prostate cancer. It does not kill it but hinders it's ability to grow. This helps with what ever your treatmens will be but comes with some real high impact side affects for most.

Statistically prostate cancer (unless you have the high risk high metassis kind) does not wind up killing you (statistics and what my urologist said at Mayo) as you most likely will die from something else. Statisically almost every man will have prostate cancer if they live long enough. When the do autopsies of those who died from other causes they find they had prostate cancer also.

So the decision to treat or not treat is a personal decision. It should be based on the most information you can get from your medical providers and your own research. And then the best options for treatments knowing the pro and cons of each. An like most of us we suggest second opinions if have any doubt.

I had 30 rounds of radiation and my PSA now is well below 1 which is the goal of my R/Os. I had very mild fatique and the usually increase in urination and need to urinate. Good R/Os will give you guidance to mitigate each of thes like they did me. Other than not being able to ride my bike (SpaceOar) I had no change to my lifestyle or activities.

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@ranger44

I was diagnosed over a year ago with Gleason 4+3=7 had all the tests PET, Decipher etc. I have read so many posts on this Mayo site, I have just procrastinated about any treatment. Surgeon said I was not a good candidate for prostatectomy, so that left radiation or something like HIFU, Tulsa Pro etc. All of the treatments seem to have side effects. I turned 71 last October and I am leaning towards no treatment, I would be very happy to make it to 75. I feel great, no side effects or symptoms of any kind from my prostate cancer. My Decipher score was only .35 so low risk of metastasis, my PSA has gone up a bit in the last year from 6.35 to 7.1 but nothing serious yet. I am going to try diet, Ketogenic with absolutely no sugar of any kind, this will starve the cancer cells. In the meantime, I am enjoying life and not stressing over the fact that eventually I will die from it.

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Just curious, why are you not a good candidate for surgery? Medical issues? Thanks,
Phil

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@ranger44

I was diagnosed over a year ago with Gleason 4+3=7 had all the tests PET, Decipher etc. I have read so many posts on this Mayo site, I have just procrastinated about any treatment. Surgeon said I was not a good candidate for prostatectomy, so that left radiation or something like HIFU, Tulsa Pro etc. All of the treatments seem to have side effects. I turned 71 last October and I am leaning towards no treatment, I would be very happy to make it to 75. I feel great, no side effects or symptoms of any kind from my prostate cancer. My Decipher score was only .35 so low risk of metastasis, my PSA has gone up a bit in the last year from 6.35 to 7.1 but nothing serious yet. I am going to try diet, Ketogenic with absolutely no sugar of any kind, this will starve the cancer cells. In the meantime, I am enjoying life and not stressing over the fact that eventually I will die from it.

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Ranger, sorry but you can’t starve cancer cells using diet. They can make their own glucose from the ketones you produce on that diet. Google gluco neogenesis and you’ll see why.

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@jc76

@ranger44
Life expectancy is into 80s if you take care of yourself. I am 78 in May. I had prostate cancer at age 76.

I had radiation of 30 rounds of proton at UFHPTI. I did not need hormone treatments because my Decipher test showed low risk.

I agree with another poster that limiting your glucose is questionable. Not sure where you got that information if not from your medical providers I would question that. Your body needs glucose and your organs need it.

The factor that feeds your prostate cancer growth is testostorone. That is where hormone treatments come in. They limit testorone in your system and starves the prostate cancer. It does not kill it but hinders it's ability to grow. This helps with what ever your treatmens will be but comes with some real high impact side affects for most.

Statistically prostate cancer (unless you have the high risk high metassis kind) does not wind up killing you (statistics and what my urologist said at Mayo) as you most likely will die from something else. Statisically almost every man will have prostate cancer if they live long enough. When the do autopsies of those who died from other causes they find they had prostate cancer also.

So the decision to treat or not treat is a personal decision. It should be based on the most information you can get from your medical providers and your own research. And then the best options for treatments knowing the pro and cons of each. An like most of us we suggest second opinions if have any doubt.

I had 30 rounds of radiation and my PSA now is well below 1 which is the goal of my R/Os. I had very mild fatique and the usually increase in urination and need to urinate. Good R/Os will give you guidance to mitigate each of thes like they did me. Other than not being able to ride my bike (SpaceOar) I had no change to my lifestyle or activities.

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Curious why you say you can't ride your bike? I had fiducial markers, rectal spacer, 4 weeks of Proton radiation a month ago and follow Orgovyx regimen for 6 months. Should I avoid exercise bikes in particular? Thanks.

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@brian5837

Curious why you say you can't ride your bike? I had fiducial markers, rectal spacer, 4 weeks of Proton radiation a month ago and follow Orgovyx regimen for 6 months. Should I avoid exercise bikes in particular? Thanks.

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I was told no bike riding between the placement of the spacer and the end of radiation treatment because the bike seat could cause the spacer to move or be compressed.

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@scottbeammeup

I was told no bike riding between the placement of the spacer and the end of radiation treatment because the bike seat could cause the spacer to move or be compressed.

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So after radiation treatments are finished it's okay to ride bikes?

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@brian5837

So after radiation treatments are finished it's okay to ride bikes?

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Yes, unless you feel pain or irritation after riding. But waiting a few weeks couldn’t hurt.

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