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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: 2 days ago | Replies (1051)

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@karencan2025

We have an update, although more diagnostic have to be run to fully confirm things, followed by a treatment plan. I guess there are different sorts of monoclonoal proteins, and I know so little about them. But according to the hematologist, the ones he has indicated non-Hodgkin's lymphoma. It's a very rare variant called Waldenstrom's macroglobulinema (4-6 per million people are diagnosed with it.) There appears to be some link between this disease and myeloma but I hope that won't be the case. So I guess we go from here, and I can just hope that treatment will be successful. Thanks again for the support.

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Replies to "We have an update, although more diagnostic have to be run to fully confirm things, followed..."

@karencan2025 Once you have more information, I am sure there will be relief from the "not knowing exactly what it is"! If you go to the Blood Cancers & Disorders support group here, then type in Waldenstrom in the search bar, there will be a list of discussions you can review. Personally I might peruse it lightly, but not take a lot to heart until you have more complete information.

How are you doing today, handling this new information?
Ginger