Hi @dan56. First so sorry you are going thru this and know this group is a great support place. What you are describing is so familiar to so many here and confident you will find helpful experiences/techniques……to help you. Not to discourage but know this is still so new in the medical community world and each person affected so differently with their specific medical history. Having a trained Neuro Physical Therapist and Trauma Level Mental Health Provider can assist thru things like box breathing for covid created symptom of anxiety which creates many symptoms, food/reaction diary to pinpoint foods etc creating middle of night waking histamine release and its symptoms, nerve conduction study to rule out other causes and then focus on helpful lifestyle changes. Many here can assure you with the time your body needs and focus on changes this situation requires, you will notice improvement to build on, have grateful hope, and joy. Quickest healing to you🌈

Yes, this is tough. I also had the MS work up, MRI, etc. it’s hard to explain that your head, face, etc is vibrating, and feels like tremors or like your funny bone when you hit your elbow.
First, Google COVID and internal tremors. There are articles on the latest studies;
From Yale school of medicine:
‘internal Tremors: Adding to the list of Long COVID Symptoms’
August 26, 2024 Freida Kreier

‘Characterization of internal tremors and vibration symptoms’
BMJ Open 2023 Dec 28;13(12)

On page 13 of the BMJ Open study, sleep disturbances due to tremors is specifically addressed.

Bring a copy with you for your doctor. Vibrations are difficult for physicians to understand as they can’t view outwardly what you are experiencing.
In the meantime…
Ice packs on my face helped, along with meditation and acupuncture for relaxation.

Hi Dan,

Gratefully, I was able to visit Mayo Clinic in-person and participate in their Post-Covid Care Clinic's program for patients impacted by Long-Covid or Post-Covid issues. After spending a week their and moving thru a series of tests, etc., their team was able to properly diagnose what was happening with me and then I went thru their virtual program and they worked with my local PCP on a treatment plan that included the following pieces as well as working with a local professional on Cognitive Behavioral Therapy.

My main symptoms were the muscle tremors, overall chest pain, radiating nerve pain, overall CNS and ANS dysfunction (rapid heart rate, GI issues, etc.), overall fatigue, and difficulty with sleeping. For the pain management and sleep disruption, my PCP started me on a low dose (10mg) of Amitriptyline and a regimen of Low Dose Naltrexone (LDN) with the hopes of resetting my central and autonomic nervous systems - I've been increasing dosage from 1mg to 4mg presently (increasing 1mg every 3 months) and my pain is much improved, I am sleeping well again, and I've had nervous system functioning (heart rate, tremors, muscle spasms, GI issues) almost restored to normal. LDN in higher doses is given to opioid overdose patients with the hopes of resetting their CNS and helping the body to naturally produce endorphins.

I hope you find this helpful and please reach out with any questions, Steve