Connect
← Return to Recently diagnosed
Discussion
Comment receiving replies
Hi Barbara,
I didn't know that Dr McShane was heading to NJH? To answer your questions:
Unfortunately, I did not maintain a relationship with NJH after my move to AZ. I wish I had. I had very mild BE when I left Denver and now moderate BE with M. Abscessus. It was so minor (tiny area), I never really considered my BE much of a problem until it was. I did not wear a mask before Covid and my NJH never suggested it back in 2012 (my last visit with my NJH doctor). I'm happy that it is now commonplace and more people are masking up, especially when they're sick. NJH doctor told me to stay away from construction sites and whenever I got sick to immediately get on antibiotics. Unfortunately, my first AZ Pulmonologist refused to write me prescriptions telling me I had viruses. She was wrong. And, in 2020 I built a house. So, I had a really good NJH doctor and now paying for not listening to him. Had I still been seeing him; I probably would be much better off now. I did find another pulmonologist here, but I always thought I had a virus and prolonged getting on antibiotics. Not understanding (trusting the doctor), a virus infection typically evolves to bacterial due to the BE.
I haven't ordered the mouth tape yet but still plan on it. I am doing good during the day and it's carrying over somewhat to overnight. I'm rarely waking up with a super dry mouth. Thank you for the update regarding 3M Nexcare.
I do like pasta and I have 1 every week to 1 every 2 weeks. For lunch, I eat sandwiches. The bread is a good whole grain, but still carbs. BTW, I think there is a link between low Vitamin D levels and BE. I have been on D3 for a few years now and keeping it at normal levels. I'm now back on C and Zinc now. Best, Kathy
Replies to "Hi Barbara, I didn't know that Dr McShane was heading to NJH? To answer your questions:..."
Connect
Yes, considering that many of those we lost to Covid were found to be low on vitamin D, I do believe that it played a role in the big picture of my eventually coming down with BE. Low Vitamin D affects our sleep and can lead to severe complications such as I went through in 2015 due to low Vitamin D. You may know that about Vitamin D.
I had two severe pneumonias at the same time in the mid 80's.
I remodeled my house and do believe it is another factor that added to what eventually happened, BE. Just those three things alone are possible reasons for my BE and I am sure there are other factors that could have come into "play" with bringing on the BE. My philosophy is, "It is never one thing." So as we live our life things may be, and probably are, building/happening inside our systems without our realizing. My belief.
Yes we all, including me, probably have had things told to us that we wish we had followed,
Glad you are seeing improvement with the mouth breathing.
It may have been a typo but to clarify Dr. McShane moved onto the National Institutes of Health in Bethesda, Maryland.
Best to YOU also,
Barbara