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Myectomy Needed

Hypertrophic Cardiomyopathy (HCM) | Last Active: Mar 30 6:47pm | Replies (29)

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@bwburchette

I had my septal myectomy exactly one year ago today at Mayo. I live in NC, so I certainly had to travel a ways to get the surgery. I could not be more pleased with the outcome. The improvements I have seen (too many to list here) have exceeded my expectations. In weighing out factors there are certainly practical considerations such as insurance coverage, family support, travel, etc but I cannot emphasize enough importance of going to a high volume center of excellence. From all the research I did, outcomes are consistently better for myectomy at high volume centers. We live fairly close to Duke University, which is a very respectable medical institution, but they don't do nearly as many myectomies as Mayo. When going to a center of excellence such as Mayo, you are getting not only the best surgeons, but an expert team who routinely did this type of surgery.
Fortunately, my local cardiologist trained at Mayo and she was able to steer me toward an excellent cardiologist and surgeon.

I was fortunate to have a very supportive wife who helped me through the recovery and 2 of our 3 children were able to fly out and spend the week. It would have been nice to have perhaps a few more visitors, but honestly in looking back not sure I would have wanted a lot of visitors in those first few days of recovery. i would certainly do some research to see what kind of volume they do there (Boulder) as well as outcome data. Best of luck in your decision!

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Replies to "I had my septal myectomy exactly one year ago today at Mayo. I live in NC,..."

I love that you shared your wonderful outcome and that your improvements were "too many to list here."
Being part of a group like this is so beneficial to those who have not gone where we, the septal myectomy people have. I am so encouraged when I see how our little group is so willing to reach out and share their own story with others.
We can share our own unique experiences and offer support that nobody else could and hopefully put other folks facing this at a little more at ease and enlightened.
Heck...even members like @gangcarotid1, who is not part of HCM/HOCM was able to chime in about their extensive kidney surgery and offer advice. Thank you for that, @gangcarotid1 .

It seems major surgery, open heart or otherwise, involves much of the same mental preparation in addition to the difficulties of travel post op for some.

I have learned many things here on Mayo Connect, and I continue to marvel at the strength, humbleness, grace, kindness and openness of our group and how we stand ready to assist each other.
Thank you for sharing how you are doing @bwburchette, and helping others on their journey.

For all the reasons you suggested and my cardiologists prodding- I will go to the Mayo- how long were you actually in the hospital and how long did you stay in the area? How long was the recovery?

Thank you