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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 1 hour ago | Replies (6361)

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@muhrich

Can anyone recommend a supplement or treatment method to help or alleviate idiopathic peripheral neuropathy?

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Replies to "Can anyone recommend a supplement or treatment method to help or alleviate idiopathic peripheral neuropathy?"

Hello, @muhrich

I need to say at the top that what I am about to tell you is not an endorsement or recommendation but only a snapshot of my experience with one particular "medicinal food," or combo of supplements, called EB-N5. I urge you to ask your doctor, if you're so inclined, if he's heard of EB-N5 and has an opinion, or way or the other.

I see two neurologists. One I'll Dr. A. It was with Dr. A that I had a series of MRIs, each looking for a possible spinal deformity that may have been causing my balance problems. None of the MRIs revealed a thing. Months went by. With Dr. A's blessing, I went to see a physiatrist––the secod neurologist, whom I'll call D. B.––who administered an EMG and diagnosed my idiopathic large-fiber PN. That was in the summer of 2022. At first, Dr. B wasn't able to suggest any meds or supplements. More months went by. Then one day, Dr. B. phoned and offered to give me a prescription for EB-N5. Dr. B. made no promises, but said that EB-N5 was itself showing some promise in early testing. I began taking EB-N5 in the summer of 2023, and I'm still taking it. I still have my PN (poor balance, but no pain), but (confirmed by a second EMG only last fall) my PN has not progressed. Can I credit EB-N5? I don't know. I'm also keeping to a good diet and doing all I can to remain reasonably active. Neither Dr. B. nor Dr. A nor I is able to say my reasonably stable PN is due to my many months of taking EB-N5. Something, however, is helping me, for which I'm deeply grateful.

If you do ask your doctor about EB-N5, I'd welcoming knowng what he says.

Cheers!
Ray (@ray666)

Hi @muhrich, I would like to add my welcome to Connect along with Ray @ray666 and others. Just thought I would chime in and mention that the Foundation for Peripheral Neuropathy has a list of supplements that have been shown to help with neuropathy symptoms in their complementary and alternative therapies document here - https://www.foundationforpn.org/wp-content/uploads/2024/11/Complementary-and-Alternative-Treatments.pdf.