Endometrial cancer: I'm so scared
Hello my name is shelley. I will be 55 in June. I started HRT for menopause 18 months ago. After a year I started having spotting daily for 6 months. I went in for an ultrasound and they found a polyp. I went in for a hysteroscopy and DNC they found 2 or three polyps in my uterus and one on the cervix. Results came back the uterine polyps are endometrial carcinoma. The cervix is benign.
That was the first surgery I have ever had. It’s been two days since I got the call and I can’t stop crying. I am so scared. I am afraid to tell my kids. I expect a call from the oncologist this coming week.
Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.
Thank you and you are welcome! Marissa Peers youtube videos helped. Giulia Muntoni story on TedTalk helped. Doing my own visualization on how the cancer was "locked" inside my uterus and imagining it would not grow any longer until my surgery day. Being kind to myself, sending light to my body and having compassion for what I was feeling. Crying a lot and connecting with my body and soul, searching for what it. was teaching me about my relationship with my children. On the day of the surgery, I imagined offering my sick uterus to mother earth as a offer and thanked him/her for having serve the birth of my son,
Hi Shelley. I am 59 and my diagnosis was a shock. Things moved quickly for me, which was a whole lot of luck. I had surgery in early Feb...radical hysterectomy. My oncologist booked chemo for me to begin asap after recovery. I just had chemo 1 this past Tuesday. Because things happened so quickly, I have hardly had time to process it all, but I am staying positive, taking one day or week at a time, and figuring out my new normal. It is scary. My initial diagnosis suggested a lower stage than post surgery pathology, but I trust my team, and believe treatment will work. This forum is incredibly supportive and informative. So far, I have not had nausea, I had a slight reaction to one med, dealt with quickly, and today I have achy legs and trying to drink more water than ever in my life before. I think each day might bring a new symptom, but that's okay. Onward. I wish you peace and calm, and reach out if you need to. 🤗
Thanks for your response. I had surgery scheduled for the 19 of April but they just called and moved it to May. Letting it go another 7 weeks scares me. The waiting and not knowing is crippling.
@sbryant What was the explanation for moving your surgery to May? You have a diagnosis from your biopsy of endometrial carcinoma so if this were me I'd sure like to move the surgery along as soon as possible. This would be frightening to me too and I can only imagine how this change in dates has affected you. Can you talk with your GP or your oncologist and ask if your surgery can be moved back to April?
Because the OR that handles, the robotic laparoscopic is unavailable at that time. My surgical oncologist said I could have one of her colleagues do it but I was so comfortable with her. She’s going on vacation the third week of April and she was hoping the 28th would work however somebody beat me to the punch. I really don’t wanna switch surgeons, especially since I haven’t spoke with them and she said she thinks it will be OK to wait the seven weeks as when it was during Covid they waited three months. I am on a waitlist for a cancellation.
Shelley Bryant
@sbryant OK. That all makes sense in how you want your surgical oncologist to perform the surgery. I'm glad you were given a choice. It's good that you are on a waitlist for a cancellation too.
The OR she needs isn’t available and she will be out one week in April. She offered to have a colleague do it. That didn’t make me feel comfortable as I’ve met and talked with her and felt a good connection.
thank you for your support.