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Essential Thrombocythemia: Making treatment decisions
Blood Cancers & Disorders | Last Active: 3 hours ago | Replies (224)Comment receiving replies
I am glad you are taking aspirin, and have no other significant health issues. Clots are a common concern for sure. I was what I considered healthy, exercising at the gym 3-5 times a week, playing golf in the summer, kayaking at the cottage, etc., etc. But then without notice I had a small stroke as a result of a 'humungous' blood clot in my carotid. It was only after this that I found out I had ET (MPL mutation) so just a little warning for you.
I am grateful the stroke left no significant after effects.
Replies to "I am glad you are taking aspirin, and have no other significant health issues. Clots are..."
Wow! I'm sure that was scary but am so happy to hear you had no side effects. I have a positive JAX2. Each day is a blessing.
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Wow! So fortunate you had no long term effects from the stroke.
It makes me wonder why hems do not make stroke assessment testing part of diagnosis of ET as risk of stoke is what is of concern!
Good advice for all of us with ET to request a carotid artery test and coronary calcium score . These tests are painless.
Your story is a good example of why all of us should request these tests. I had to beg for mine….