← Return to Friend has Brain Cancer Glioblastoma: What are the next steps?

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@waltv

My wife was diagnosed with glioblastoma, stage four, in 2013. We didn’t see it as a death sentence. We saw it as an opportunity to travel. We have been as far south as Costa Rica and as far north as Iceland. We spent a week in Florida every winter, house boats on the Thousand Islands, Nashville, New Orleans and countless places in between. Recently she has had gradual impairment from the treatment so we don’t travel anymore. April 1 it will be 12 years since her surgery. So please, don’t make it a death sentence. Enjoy life one day at a time.

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Replies to "My wife was diagnosed with glioblastoma, stage four, in 2013. We didn’t see it as a..."

Hi. My son just diagnosed as well. Stage 4. Started radiation and chemo pill. What treatments did your wife undergo to life do much longer? Thx

Wow, my husband was dx'd in Jan 2024 with stage 4, no biopsy could be done because it is so deep, they recommended radiation/chemo, which he did until this past Jan, when it was proposed to stop the treatments as toxcity may be creating his functional decline. He looks good on paper, but in person, always very fatigued, now in w/c, cognitively declining, but has moments of clarity/alertness. At the end of Jan, the md recommended hospice and here we are 2 months later, the md felt that it might be a matter of weeks, and thus not so far. Very frustrating, am considering taking a break from hospice in order to get a repeat MRI, just to see has it expanded at all. He is very very resistant to doing anything he is afraid he will die and I will be left with trying to manage that if we go away. I really would have liked to go to Fla at least , but that would require a handicapped accessible room/shower also being dog friendly. And truthfully, his anxiety level would be so high, it would not be worth it, I might get him to consider a weekend trip to see our daughter who is 6 hours away and does visit, but it might be a nice change of pace. At least if we had some evidence it was expanding or not, then he might be convinced, I just don't know. I think his major difference is that they couldnot even do a biopsy, because they felt it would leave him more impaired than he was which at the beginning he had no issues. his sx's were elusive and infrequent for almost 2 years when he finally relented to have it checked out. I hate that we are just 'waiting for him to die' now. today he at least agreed to go out with our aide, to buy a grill and eat out.but I am happy we did it but i know it was tiring for him.