← Return to Essential Thrombocythemia: Making treatment decisions

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@1pearl

Hi skossaz,
I am so glad you are happy and doing well although your platelets are rising. Honestly, I really do not worry about my platelets and mine are high too and probably have been for years. I have no underlying health concerns or previous issues other than two nonpainful enlarged joints. I just take aspirin but I do understand clots are a concern although I am only CALR mutation. I have never taken Hydrea and resist until I feel it is necessary as it just kills all blood cells as is cytotoxic. It doesn’t slow progression to Myelofibrosis. I am grateful to God that I feel fine and have no symptoms. Yes, you are older than I am and I may change lots when I am a bit older, but I am glad we both have an attitude of gratitude with positivity around us with our families.
Stay positive and happy!

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Replies to "Hi skossaz, I am so glad you are happy and doing well although your platelets are..."

I am glad you are taking aspirin, and have no other significant health issues. Clots are a common concern for sure. I was what I considered healthy, exercising at the gym 3-5 times a week, playing golf in the summer, kayaking at the cottage, etc., etc. But then without notice I had a small stroke as a result of a 'humungous' blood clot in my carotid. It was only after this that I found out I had ET (MPL mutation) so just a little warning for you.

I am grateful the stroke left no significant after effects.

Thank you for your comments.You help to keep me inspired. I try to stay in the moment and no worry about my platelets!♥️