← Return to facial paralysis as a result of tumor

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facial paralysis as a result of tumor

Ear, Nose & Throat (ENT) | Last Active: Mar 28 2:14pm | Replies (8)

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@sepdvm

Hello @katiana, welcome to Mayo Connect. Like @clevyjam, my facial nerve was involved in my tumor and severed and then reattached during surgery. It is a slow process waiting for nerves to heal, but they do, just not quite normal again. I have lived with this for 13 years now. It is very hard to accept the facial changes, but there are ways to help. Look up Facercise books by Carol Maggio. Regular facial exercises can help quite a bit. It is just so hard to see yourself in the mirror and not wish for everything to look like it did presurgery. With time there is acceptance, but that is an individual thing, and even now I still wish for my more normal appearance. Try to stay positive, feel free to respond to the looks and stares with a quick explanation. I was a working veterinarian and clients thought I had had a stroke so I explained to them why my appearance changed. Somehow that helped me feel better about it. As for strangers' stares, it is what it is. And it is better than being dead from your cancer. Keep telling yourself that and be strong.

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Replies to "Hello @katiana, welcome to Mayo Connect. Like @clevyjam, my facial nerve was involved in my tumor..."

Thank you, I may reach out to you privately if that's okay. Will get the book! I am an explainer, too, if I can find a way to address it right off. For now I find myself avoidant with gatherings I would normally embrace, and my professional life is toast, being a psychotherapist and all! I have a question, it reads like they reattached your facial nerve at the same time they were doing the surgical removal of the tumor? I am making a list of questions for my upcoming appointment with my surgeon before I schedule this procedure. Anything you wished you had asked beforehand is welcome! so grateful.