Hello Sue! Yes, I am new to the group and grateful for your reply and in finding this site.
I live in Canada.
I have had symptoms for approximately 4 years. They started with coughing up white phlegm in the morning and cough throughout the day. My voice was affected with hoarseness and I had to give up my love of choral singing! I was hospitalized with pneumonia in October 2023 and diagnosed following chest x-ray, CT scan and Sputum culture.
In December 2023 I was started on Ethambutol 1250mg, Mon, Weds, Fri, Azithromycin 250mg, 1 tab daily. Rifampin 300mg, was added one month later, every Mon, Weds and Fri. After 6 months, I had to eliminate Rifampin due to debilitating side effects. Since August 2024 I have continued taking the other two drugs, even though Azithromycin causes stomach cramping.
A recent Sputum culture still shows abnormality. I would welcome hearing stories on how people have managed this bacterial infection and success with any alternate medications.
Nessa