How to get appointment

@diane694,

It can be frustrating when receive a denial letter, no matter what reason. It sounds like you self-referred yourself. You can also ask your provider in Mississippi to do a referral and provide medical records.
See: https://www.mayoclinic.org/medical-professionals/provider-relations/refer-patient

I see you also asked about suggestions for providers in Autoimmune group. Hopefully you will get additional recommendations there.

If you are not successful getting an appointment at Mayo, have you considered an university medical center near you?

My daughter has been denied also, Urologists. My insurance care manager suggested anyone can go to the Mayo Clinic ER. Although an appt would be great. Sadly the appt process requires patient to go to one discipline. This has been her problem. The symptoms are urological but urology refuses to do anything about it. This is why we are going to Mayo Clinic because we don't know what is wrong. We have suggestions from urologists what they suspect this might be but we keep getting kicked back. We need the Mayo whole-body approach to help determine what is wrong, maybe this is infectious disease or auto immune or nephrology and results in urological symptoms. Therefore we are going to the Mayo ER and ask them for help. I did not know you could go to the ER. Maybe this will help you also.

@bonbon2006
Welcome to Mayo Connect. I am sorry for situation you are in with daughter, but I do not agree with your insurance carrier about just going to Mayo's ER for help. At ER, you will be triaged briefly to determine urgency in seeing a provider in ER. If ER is busy, and you're not an emergency, you will wait. Showing up at ER is not a guarantee of getting an appointment at Mayo, you may be told to follow up with your own provider.

In addition, you are taking resources away from emergency's (heart attacks, stokes, trauma, etc...) .

Is your daughter a minor or adult?
Did your providers do a referral to Mayo or did you request appointment on your own?

@diane694 and @bonbon2006, it sounds like you have taken the right steps to request an appointment at Mayo Clinic. Mayo Clinic has more requests for appointments than available openings,. Some steps you may consider:

Ask your doctor to submit a physician referral on your behalf.
Request an appointment at another Mayo Clinic location.

Another option is to consider seeing a doctor within the Mayo Clinic Care Network https://www.mayoclinic.org/about-mayo-clinic/care-network.
"The Mayo Clinic Care Network is a select group of independent health systems that are granted special access to Mayo Clinic's extensive knowledge and world-leading medical expertise. Carefully vetted and selected for their commitment to high-quality patient experience, care network members share Mayo Clinic's goal of providing patients the care they need, close to home, at no additional cost to the patient."

Find a health system in the Mayo Clinic Care Network near you: https://www.mayoclinic.org/about-mayo-clinic/care-network/network-members

@roch and @colleenyoung
Thank you for the helpful information. I have requested an appt at Jax-Urology and at Rochester-Urology, now the request is with Nephrology.
I understand your positions and they are logical.
There are constraints which I have not detailed which are inputs to my decision making.
Ideally, we would have an appt and this would be a more organized process.
She is not a minor, she is 18. She is a Senior in High School. She is sick and continues to be sick while Urologist after Urologist pushes her out the door, including at Mayo trying to get an appt.
Her case is "atypical" , If I knew what was wrong with her then she would not be sick and this would be a non-issue. Gentle explaining the following....
No, this is not acute life threatening emergency like a heart attack, however this is a "life threatening emergency" for her as her "atypical" kidney infection/strange and concerning kidney stones/specimens, kidney pain, ureter/urine blockages and stabbing in her ureter, daily pain and suffering health issues are threatening her school and her life, and mine, as her caregiver. Her quality of life is painfully, rapidly deteriorating. While the High School and tutoring are helping, as long as her health permits and right now her absences and illness make a satisfactory GPA and graduation questionable, her opportunity to go to college is very questionable, she has a learner's permit but she is not healthy to drive, she can barely make it to school, she has no extracurricular activities, she has held no job and she misses out on many, many social activities. She is strong and has good friendships but illness robs a young person of their social outlets, her self-esteem and her dreams. Being a semi-functioning young adult is helpful but not acceptable life when there has to be a reason. I am caring for her 75% and my work-life is impacted, no I am not able to take Family Medical Leave right now, due personal constraints. She just can't miss more school days therefore we have to go when she is on holiday from school and we will wait. We are praying they will see her and look at her whole body and provide a diagnosis and solutions. Thanks for understanding,

@bonbon2006
Hello, I just read your post about your daughter. She is very young to be having kidney stones. My daughter began having severe/obstructing kidney stones last year when she was 28 which was also young for stones. It was determined that she had hyperparthroid due to one very enlarged parathyroid glad. She had a parathyroidectomy early Dec 2024. Has your daughter had her blood calcium and PTH checked? An ultrasound and perhaps other nuclear scans might be needed. I have also had a parathyroidectomy and 3 1/2 of my 4 parathyroids removed. Mine was done at Mayo Rochester by Melanie Lyden Dept Head of Endocrine Surgery. My daughter had hers at U of IA. Just something to check into, as hyperparathyroid causes high blood calcium and subsequently kidney stones. It can also mess with hormones, brain fog, mood, body pain, etc. I hope you find answers! My daughter hasn’t had any stones since her surgery 12/6/24.
Jennifer

Thank you so much for your input. I will ask them about this. thank you !

This was my experience at the Phoenix location trying to get an appointment for my husband with a highly recommended surgeon. First I called them to ask the process. I was told to have my husband's specialist send a letter of referral as well as all of his medical records (they gave me the email address to have this information submitted to). Then it would go to a triage committee who would review everything and decide whether or not my husband would be INVITED to see the doctor we requested. I was told this process typically takes about two weeks after they receive the referral and records.
I contacted his specialist and they sent everything that was requested.
In the meantime, my husband met with an oncologist to begin chemotherapy. We mentioned the doctor at Mayo (whom his specialist had recommended) and we were amazed to hear the oncologost say, "I know him! I'll call him tonight".
The next morning at 8 a.m. , the Mayo doctor's office called and offered my husband an appointment for the next day. We couldn't believe our luck! We felt blessed.
I hate to say it, but nowadays connections matter.

I did not know about the Mayo Clinic care Network. Thanks for sharing!

Wow, sounds like a challenging situation for both of you. Praying you can find help that is needed for your daughter soon. Stay strong