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Living with MDS (Myelodyplastic Syndromes)
Blood Cancers & Disorders | Last Active: Apr 18 2:35pm | Replies (147)Comment receiving replies
I was diagnosed with MDS IB2 March 2024 age 76. I was told by my hematologist and two others at two different transplant centers that because I was in otherwise good health my age was not an issue for a stem cell transplant. After 3 rounds of chemotherapy my cell counts were normal and my blast count down to 2%. I informed my hematologists that I was opting out of the transplant choosing instead to pursue long term chemotherapy. They agreed. In the interim I had turned 77 in January of 2025 and they were still willing to go forward with the transplant if I wanted it.
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Hi there - I am 70 years young & just diagnosed with MDS IB2. My hematologist said it might be therapy related (had chemo 17 years ago for breast cancer), but that’s not been confirmed.
Dr said I would have 3-4 rounds of dacogen (sp?), then a bone marrow transplant. It was, like, not a question, but a given.
As I sit here this week waiting to be scheduled for the chemo, I find myself wondering about so many ‘what if’s’ but in a good way. What if my bloodwork starts improving? Will the transplant still be a given?
I know no one can really answer that. So I’m just trying to take one day at a time!