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Wild-type ATTR Amyloidosis (ATTRwt): What meds help you?
Blood Cancers & Disorders | Last Active: 1 day ago | Replies (18)Comment receiving replies
Welcome, @chrissteyn51. I moved your question about medications for amyloidosis ATTR to this existing discussion to connect you with @markwithwildattr and others.
- Wild-type ATTR Amyloidosis (ATTRwt): : What meds help you?https://connect.mayoclinic.org/discussion/just-diagnosed-with-wild-type-attr-at-67/
Is this a new diagnosis for you? What treatment(s) have been recommended for you?
Replies to "Welcome, @chrissteyn51. I moved your question about medications for amyloidosis ATTR to this existing discussion to..."
Good day. Yes the cardiloog identify this protean last week. I do not use any medicine at this stage. Live in South africa and doctor said this medicine is very expensive.
Good day. Yes a new diagnosis and did not start yet with any medication.
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Yes I was just diagnosed the first of Febuary. My cardiologist has prescribed Attruby which i was approved for . There is a study going on here in Houston at Methodist and Baylor St. Lukes caleed the Crispr Cas 9 study which I am applying for.