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Anyone want to talk about Myelofibrosis?

Blood Cancers & Disorders | Last Active: 4 days ago | Replies (165)
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@loribmt

Welcome to Mayo Connect, @chrisatwell. We all occasionally need a lifeline. And sometimes all it takes to bring comfort and encouragement is to know that others are going through the same thing we are. I’m so glad you’re here!
Would you like to share a little more about your story? Were you also diagnosed with myelofibrosis?

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Replies to "Welcome to Mayo Connect, @chrisatwell. We all occasionally need a lifeline. And sometimes all it takes..."
chrisatwell | @chrisatwell | Mar 26 6:40am

Thank you.
I will be 69 years old next month and was diagnosed with PMF in January. My spleen is already 19 cm as is my liver as well. I have varying but constant abdominal pain/discomfort. My doctor prescribed hydroxyurea last month and it seems to be starting to help as my pain level is coming down.
I have sporadic fatigue. Some days it's hard to get anything done. My only other bother is diarrhea.
I also have Type 2 Diabetes which pretty much dictates what and when I eat.
I'm trying to maintain a positive attitude but it's a challenge some days. @dunewalker 's message was a helpful reminder to keep up a proper perspective.

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