← Return to What I Learned From My Open Heart Surgery

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@walkinggirl

Over time my cardiologist noted that echocardiograms showed increased thickness and had talked about surgery for several years and warned me about the possible consequences of HOCM. I was feeling fine. Doing everything I wanted to do. You have to be kidding. Elect to have open heart surgery? No way, even if I was slowing down. No pain, slightly out of breath walking and biking on hills - very active lifestyle here. Then, one night in 2/22 I woke up feeling sick, passed out on the way to the bathroom. Catherization showed no heart attack, clean arteries. Cardiologist had been worried that this might happen. Told me that it was important to have surgery (septal myectomy), or my family will miss me. So I did in 7/22 at Mayo. Camzyos was never mentioned, gradient too high, anyway, cardiologist later said that the research showed patients generally eventually need surgery. It was hard breathing anytime I was walking for 5 months waiting for the big day. I also knew no one with HCM even though 1 in about 500 people have it. One of my nurse friends said to have the surgery while I was healthy enough - excellent advice. Your cardiologist seems well versed in HCM, be sure to have your surgery at a COE when the time comes. Let us know how you are doing during the times ahead.

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Replies to "Over time my cardiologist noted that echocardiograms showed increased thickness and had talked about surgery for..."

Thanks! What is a COE?