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Wild-type ATTR Amyloidosis (ATTRwt): What meds help you?

Blood Cancers & Disorders | Last Active: Mar 28 8:31am | Replies (13)
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@colleenyoung

I'm tagging @robertreidrx @jam5 and others who have experience with Wild-type ATTR Amyloidosis (ATTRwt) to join this discussion.

@markwithwildattr, how are you doing on Attruby (acoramidis)?

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Replies to "I'm tagging @robertreidrx @jam5 and others who have experience with Wild-type ATTR Amyloidosis (ATTRwt) to join..."
markwithwildattr | @markwithwildattr | Mar 24 7:53pm

My amazing cardiologist linked two small symptons of bilateral carpal tunnel and a small skip on my EKG prompting her to schedule a PYP scan . Im feeling fine otherwise and have been taking acoramidis for 5 weeks now. I'm hoping to enroll in the MAGNITUDE study (CRISPR/Cas9) sponsored by intelliatx.com/our-science/ as it is a 1-time intravenous infusion that goes directly to the liver and finds the TTR gene and knocks it out.

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