@walkinggirl I noticed you said that your HOCM became suddenly worse. Mine just did that about 8 weeks ago. It was completely out of the blue, like one day I was doing fine 3 years after the diagnosis, and the next day I had shortness of breath, chest ache/pain, exhaustion etc. My cardiologists did an echocardiogram and it did not show any obstruction. So they were doubtful that the problem was HOCM but while I was looking for other causes (pulmonologist and other docs trying things out and testing), my cardiologists eventually did a cardiac catheterization and checked pressures and gradients on left and right sides of my heart both at rest and when they sped up my heart with medication injected during the procedure and that test did show the obstruction. They were surprised that it didn't show on the echocardiogram. Then I started jumping through all of the hoops to get Camzyos. That process took up so many hours of my life just to get the first 35 pills. A million calls etc. And as the end of the first month on Camzyos began to get closer to ending, I needed to make another million calls and have another echocardiogram so I could get the next 30 pills for the coming month. I'm still working on that and have only 6 pills left. They won't set up delivery unless you do all of this AND have 7 or less pills left. Very stressful worrying I won't get the delivery on time and will miss doses. And because the medication is so new, the doctors aren't aware of how much of this falls on the patient or of many of the side-effects. But the Camzyos did relieve the symptoms (so far). I know it's temporary relief and that eventually my heart walls with continue to thicken and make it a life-threatening situation. Anyway, when you said your HOCM became suddenly worse, I felt less alone--this is the first time I ever heard anyone say they had the same experience I had--I don't know anyone else with HOCM which is why I'm on this bulletin board.