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ET progression if all blood cells are increasing?

Blood Cancers & Disorders | Last Active: Apr 1 6:59pm | Replies (20)
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@lea123

Hi Janemc, what level did they think was too high for your platelet count? We have been ok with mine up to about 600 using less HU. Lea

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Replies to "Hi Janemc, what level did they think was too high for your platelet count? We have..."
janemc | @janemc | Mar 23 2:34pm

Hello, Lea! For me too, it's like I'm out of breath after running up a flight of stairs -- except all I've done is get out of bed. Breathing becomes a lot easier about an hour after I take an antihistamine.

As to platelet count: HU got my count down from the 700s, but it's been stuck in the mid-500s, and my oncologist wants to get it below 500. That may be because I'm 70, old enough to be considered at higher risk of clots.

If you wish, please share with us how your appointment goes. We're rooting for you!

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