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Anyone want to talk about Myelofibrosis?

Blood Cancers & Disorders | Last Active: 23 hours ago | Replies (165)
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@dunewalker

I was diagnosed with myelofibrosis a year ago, along with B-cell lymphoma. I’m taking Hydroxyurea with no side effects, feeling remarkably good, have labs done every two months. I’m 83, active and thankful for this platform with which to raise awareness and questions.
Try to continue your usual activities and enjoy life. This diagnosis does not define you; it’s just a bump in the road. Stay positive and thankful and you can handle whatever comes. Of all the kinds of cancers out there, myelofibrosis is not a bad one to have.

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Replies to "I was diagnosed with myelofibrosis a year ago, along with B-cell lymphoma. I’m taking Hydroxyurea with..."
chrisatwell | @chrisatwell | Mar 24 7:44am

Thank you. I needed to hear this today. God bless.

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1pearl | @1pearl | Mar 28 2:24pm

Hi dunewalker,

Since I really do not know what I actually have, a have not taken Hydrea ever. With my ET diagnosis seemingly changed to Myelofibrosis, I am concerned that Hydrea would lower red, white, as well as platelets too much trending toward leukemia. Great to hear yours are doing well.
Since the day my O/H changed my diagnosis from ET to Myelofibrosis, I have had two labs and my red cells and hemoglobin are normal but the lab earlier once only showed them low.
I still have no symptoms and feel fine, but do take baby aspirin as my platelets are high on all labs.
I totally agree with your advice to keep busy doing your normal activities and stay positive.

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