1. < Autoimmune Diseases

Dupixent?

Posted by hopenr @hopenr, Mar 22 7:21pm

My psoriasis started several months ago and is all over my body now. Mild to moderate. My doctor suggested Dupixent after topical steroids have not been successful. Is anyone on it? I would very much appreciate hearing about your experience. Thanks.

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@seekinginfo | @nrd1 | Mar 23 10:30am

@hopenr -
There are many other new medications for psoriasis that are to be tried after topical steroids before Dupixant.

Especially if you are mild to moderate.
OTEZLA, Zoryve to name a few.

If this is a Dermatologist they should know that there is different step therapy before Dupixant.

REPLY
hopenr | @hopenr | Mar 23 11:46am

I mentioned Zoryve & Otezla to her. She said there are serious long term side effects as a result of this medication. She knows how adverse I am to poisonous meds and she said the research indicates that Dupixent is actually better tolerated by the overall system than those two (?). She had a ton of research. I don't know....
It is depressing!

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seniormed | @seniormed | Mar 23 12:16pm

I don’t think Dupixent has been approved for psoriasis. Doctors can prescribe
off label but insurance help is necessary for these costly new injectables.
Check to see if it approved and covered. If not you may need a second opinion. Other biologic medications have a longer track record in use for psoriasis. I chose Humira for that reason.

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1 reply
hopenr | @hopenr | Mar 23 12:58pm
In reply to @seniormed "I don’t think Dupixent has been approved for psoriasis. Doctors can prescribe off label but insurance..." + (show)
@seniormed

I don’t think Dupixent has been approved for psoriasis. Doctors can prescribe
off label but insurance help is necessary for these costly new injectables.
Check to see if it approved and covered. If not you may need a second opinion. Other biologic medications have a longer track record in use for psoriasis. I chose Humira for that reason.

Jump to this post

She said it may be atypical dermatitis. I am so confused.

REPLY
1 reply
kaykiltubrid | @kaykiltubrid | 1 day ago
In reply to @hopenr "She said it may be atypical dermatitis. I am so confused." + (show)
@hopenr

She said it may be atypical dermatitis. I am so confused.

Jump to this post

She probably said “atopic dermatitis” which generally refers to eczema. You should clarify with your doctor whether she thinks what you have is psoriasis or eczema (or something else). And you can always ask your doctor to spell or write down any diagnosis you aren’t sure of.

In any case, I’ve been on Dupixent for about 3 months. I take it for a rare autoimmune disease called pemphigoid. It has really cut down on the itching a lot. My doctor says it can take up to 4 months to be fully effective.

It’s very expensive and it was hard for me to get approved for insurance coverage because pemphigoid is so uncommon, it’s not in the list of approved conditions. After 2 appeals, it was finally approved. If you do have eczema, insurance shouldn’t be a problem for getting Dupixent because it’s one of the common conditions most insurance will approve.

I have had no side effects whatsoever from Dupixent. It’s an injection you give yourself every two weeks and it’s very easy to use (no syringes, just a cartridge you place against the skin of your abdomen). I don’t even feel it.

Hope that helps!

REPLY
2 replies
hopenr | @hopenr | 1 day ago
In reply to @kaykiltubrid "She probably said “atopic dermatitis” which generally refers to eczema. You should clarify with your doctor..." + (show)
@kaykiltubrid

She probably said “atopic dermatitis” which generally refers to eczema. You should clarify with your doctor whether she thinks what you have is psoriasis or eczema (or something else). And you can always ask your doctor to spell or write down any diagnosis you aren’t sure of.

In any case, I’ve been on Dupixent for about 3 months. I take it for a rare autoimmune disease called pemphigoid. It has really cut down on the itching a lot. My doctor says it can take up to 4 months to be fully effective.

It’s very expensive and it was hard for me to get approved for insurance coverage because pemphigoid is so uncommon, it’s not in the list of approved conditions. After 2 appeals, it was finally approved. If you do have eczema, insurance shouldn’t be a problem for getting Dupixent because it’s one of the common conditions most insurance will approve.

I have had no side effects whatsoever from Dupixent. It’s an injection you give yourself every two weeks and it’s very easy to use (no syringes, just a cartridge you place against the skin of your abdomen). I don’t even feel it.

Hope that helps!

Jump to this post

Crossing my fingers that you continue to improve and heal. I start UVB therapy next week.

REPLY
lpmikey66 | @lpmikey66 | 14 hours ago
In reply to @kaykiltubrid "She probably said “atopic dermatitis” which generally refers to eczema. You should clarify with your doctor..." + (show)
@kaykiltubrid

She probably said “atopic dermatitis” which generally refers to eczema. You should clarify with your doctor whether she thinks what you have is psoriasis or eczema (or something else). And you can always ask your doctor to spell or write down any diagnosis you aren’t sure of.

In any case, I’ve been on Dupixent for about 3 months. I take it for a rare autoimmune disease called pemphigoid. It has really cut down on the itching a lot. My doctor says it can take up to 4 months to be fully effective.

It’s very expensive and it was hard for me to get approved for insurance coverage because pemphigoid is so uncommon, it’s not in the list of approved conditions. After 2 appeals, it was finally approved. If you do have eczema, insurance shouldn’t be a problem for getting Dupixent because it’s one of the common conditions most insurance will approve.

I have had no side effects whatsoever from Dupixent. It’s an injection you give yourself every two weeks and it’s very easy to use (no syringes, just a cartridge you place against the skin of your abdomen). I don’t even feel it.

Hope that helps!

Jump to this post

Hello, my husband has had bp (bullous pemphigoid) for about a year. Is this the type of pemphigoid you have? It’s been such a challenge with blisters, scars, terrible itching. He has not tried Dupixent. Any feedback would be helpful. Hope this medication continues to help you!

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