Controlling Tinnitus: What works for you?

Wow, Again- - valium I would be on the floor- Drugs mot my thing-
can’t do em-
For you so good for you-

It is what it is- That’s all you got- I’m always waiting for updates For healthier choices-I doubt That’s gonna happen -

I feel so sorry for anyone suffering from tinnitus and fortunately I only suffer from severe hearing loss.
That being said what happened to the posts regarding hearing loss?
Someone must have something to say about the newest and greatest hearing aid or tips on how to make your hearing aids work better.
I welcome any feedback.

Hi,@bobbyboomer. I just found this site. Thank you and the others for the input. My husband has had tinnitus for several years and can't seem to find any answers anywhere. I just went to the Vitacost site, and it says this item is no longer available. They do mention other brands, so I'm wondering if you know anything about any of them: NOW Taurine, Life Extension Taurine, Nutricost Taurine, and some others. ~~ lkagma

I have tried before and I will try again to not ignore those suffering from Tinnitus.
That being said when will the discussion get back to hearing loss. Is the stigma of hearing loss preventing you from posting on this site. Is it OK to post about Tinnitus but not hearing loss? Hearing loss dramatically affects millions of people in this country and hearing aids and CI’s can give people back the gift of hearing. Let’s start talking again about hearing loss. If my six year old granddaughter can not only talk about her hearing loss but actually say she needs hearing aids and wear them you can as well. Not only does she wear them but rather than being self conscious she owns them. Kids in her class have actually gone home to their parents and said they want hearing aids like hers. One classmate asked her why she wore them and she said it was for the same reason people wore glasses. People wear classes so they can see better and she wears hearing aids so she can hear better. There is no stigma around glasses so why should there be a stigma around hearing aids.
Why don’t we listen to a six year old and start talking about hearing loss on this site again.
I have severe to profound hearing loss but rather than ignore it I own it just like my granddaughter. Hearing aids have given me my life back and I am continually trying to find out more about the advancements they are making with the technology.
Let’s start to hear from some of you on this site so we can all learn something. Share what works and what doesn’t work. Isn’t that the reason this site exists?

I appreciate the hearing loss post daveshaw and agree we should be focusing on both however approximately 95% of those who have tinnitus like myself have hearing loss. I have worked for audiologists and found Starkey hearing aids to be the best for severe loss however every brain is different. Some of the advances are Gene therapy hair cell regeneration with many professors that work on hearing aid trials. Their inst much out there that I am aware of however CIs cochlear implants seem to be the best option if your past the hearing aid cycle and I agree like tinnitus we need more advancements and I will support hearing loss advancements as well as tinnitus. Stem cell researchers claim they have found a breakthrough in repairing the inner ear cells however as you know money is tight, layoffs keep occurring. Although I am an American tinnitus Association volunteer you can contact me anytime at (tvtinnitus@gmail.com) I would love to help.

What migraine medication do you take?

Long history since my headache/migraine/vestibular migraines have been going on since my first MVA in 1964. I was not diagnosed until 2011 when I first saw a neurologist - Dr F. who specialized in migraines. I was his patient at the Medical College of WI/Froedtert Hospital in Milwaukee until I moved to FL in 2019. He started me out on Topiramate 25 mg first. I had been on Lexapro 5mg already. This remains. Over time and monitoring with education, we discussed my past history, how the medicine helped or not helped my head. MRI'S were done which discovered aneurysms, which in turn brought on other specialists to follow this and additional symptoms I exhibited. Past history included 3 MVAs, viral infections and C.diff infection that nearly killed me. But these neuro-doctors were interested in my brain. I went through a battery of various tests over those years including, hearing tests, CTs, cognitive tests, etc. Dr F. added a Sumatriptan for mild headaches. It did little for my cluster headaches. He then increased my Topiramate to 50 mg. AND then he encouraged me to try the GOLD standard - BOTOX injections. I had to think about that for a while. After reading the data and figuring out my own life - I agreed to this treatment. I have been receiving the 30+ injections since 2015 every 3 months into my scalp, neck and shoulders to take care of my migraines. Since I still have breakthrough migraines, we moved up the ladder of the Triptans since the Imitrex did nothing to help curb the headaches. The Naratriptan did nothing to help me, so we moved up to Frovatriptan which has helped me since then. It is a non-formulary drug and requires a PA just like BOTOX. The Topiramate was increased to 75 mg to make sure that it was enough. I know when I don't have enough - the migraines come with a vengeance if and when I miss any of these drugs. Escitalopram (Lexapro), Topiramate, Frovatriptan and BOTOX I also take Magnesium Gluconate 500 to help the brain stabilize. I always write a daily migraine diary which is a requirement when on BOTOX injections. On the diary, I list my blood sugars (I have diabetes), hours of sleep, vertigo - in columns. I follow a LOW TYRAMINE Headache diet. This is identified on the National Headache Foundation. Tyramine is produced in foods, from the natural breakdown of the amino acid-tyrosine, which is not added to foods. Tyramine levels increase in foods when they are aged, fermented, stored for long periods of time or are not fresh. I have learned over time to not eat these types of foods. I do not eat any left-overs or foods that are spicy or fermented. One last thing, because I had c.diff, my gut does not have the natural flora/microbiome that it once had, so I am constantly struggling to get by since the very things I need - cause me to have migraines.

Hello! My name is Amy, I just joined today and found this group talking about tinnitus. The article that led me here mentioned treatment with medications. Has anyone tried any prescription medications? Thanks.

I have not. I read some people utilized something called turaine for a period of time. Mixed results. I have also read some research leading to a connection after covid vaccines. For me this is about the time my tinnitus began especially if you had metabolic issues. I tried Levine treatment without success. Carole

As linked above:
Interested in more discussions like this? Go to connect.mayoclinic.org/group/hearing-loss/

There, you should be able to perform a search for other hearing loss posts/threads.