I have had unexplained blood abnormalities including regular high WBC, and autoimmune disorders for decades without any real pattern or issues. One night in 2017 I was sent to the ER for what was found to be high blood counts in most of the CBC.

I was sent to oncology and was then diagnosed with an unspecified MPN. I had a BMB and some plasma cells on the cyto flow looked abnormal but it was labeled “undetermined significance.” The MPN dx was removed and I was continued to be followed. Iron infusions were on the regular and I was also diagnosed with a specific mitochondrial disorder. A
Spinal tap was performed and the results matched my blood. High wbc and neutrophils.

I moved to 6 month monitoring. She added in regular M protein testing. All was well until this last Monday. It was picked up in two tests and the trending changes qualified the upgraded diagnosis. My b12 tanked and that’s why I called to move up my apt. It’s only been 4.5 months since my numbers were stable.

I expected it. And the hematologist/oncologist I think did too.