← Return to Husband in nursing home with dementia as well as secondary progressive

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@chis54

I so appreciate the feedback! By the way, yes, I meant Secondary Multiple Sclerosis. I understand completely about not telling him. I always encourage him to keep working on getting better especially with the therapy that he does get. (Physical and Occupational). Just this past Sunday when I was getting ready to leave to come home, he said wait I have to get out of this bed to go. I had to explain to him why he cannot come with me. He forgets at times that he cannot even get out of the bed without assistance from at least 2 people. So, from what all I have heard here, I believe you are correct in what is the purpose of telling him he will never be able to come home. It breaks my heart and of course sometimes I feel so bad and guilty even though I am doing nothing wrong or would even want to. He will tell me one day that he wants to come home and the next he never mentions it. He is only 66 and of course I have a hard time even believing he has dementia the age. I realize now that age does not really matter anymore, really concerning anything. TY again for the feedback and if you ever want to mention something else please know that I will be very appreciative of it!!

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Replies to "I so appreciate the feedback! By the way, yes, I meant Secondary Multiple Sclerosis. I understand..."

My goodness, that’s a lot to handle. I can see your dilemma, but you sure do seem to be very devoted and attentive. That means so much for a person who is living in AL or NH. Even after my cousin had significant decline, she would regularly, proudly say to me….I have a support system! I couldn’t believe it. I figured she heard the staff say it about her and she picked it up. It was true and it made her feel secure, though she lived in the facility.