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in desperate need for help and hope

Brain & Nervous System | Last Active: 4 days ago | Replies (11)

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@dlydailyhope

@ariza9110
What specialists have you been seeing and working with? It sounds like you need a team working together to properly diagnose and treat you.

Are you working with an ENT, pulmonologist, neurologist and dentist and have you had a swallow test? Have you had a MRI of your head and cervical spine to check nerves/vessels and inflammation? Have you had an updated sleep study and do you use a cpap regularly at night?

I wonder if an appliance worn in your mouth would help with tongue placement and help with breathing.

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Replies to "@ariza9110 What specialists have you been seeing and working with? It sounds like you need a..."

tbh, i havent worked with any, i havent seen a neurologist about it yet because im scared of it being dismissed/being looked as crazy because my situation is unusual, i have a cpap but im having incredibaly difficult time using it, ive been to sleep doctors which gaslit me even tough my sleep test is abnormal, so yea..
i also went to a tmy doctor who didnt find anything abnormal such as tmjd
and no i havent had a mri
what do you mean by apppliance, a appliance for sleep apnea? i feel like that would probably make my jaw symptoms worsier no?
thanks.