← Return to Is Essential Thrombocythemia a blood disease or cancer?

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@loribmt

According to the Leukemia and Lymphoma Society and by the opinion of most doctors in the medical community, “Myeloproliferative neoplasms (MPNs) are types of blood cancers that begin with an abnormal mutation (change) in a stem cell in the bone marrow. The change leads to an overproduction of any combination of white cells, red cells and platelets.”
You can read about them here: https://www.lls.org/myeloproliferative-neoplasms

Essential thrombocythemia-ET, along with Polycythemia Vera (PV), and Myelofibrosis are types of the blood conditions associated with MPN’s. So technically they are considered blood cancers.

I just had a long chat with my hematologist while in for my 6 month followup, having had AML 6 years ago. He knows I mentor for Mayo Connect and sometime we have discussions about different forms of blood cancers and conditions, how they mutate, and potential treatments. We talked about MPN’s this time. The take away is. yes, they are a type of chronic blood cancer by definition. Blood cancer refers to malignancies that affect the blood, bone marrow, and lymphatic system. In ET, a change has occurred where there is an overproduction of platelets.

However, as others in this support group have stated, as did my doctor…
”These are conditions where a person is more likely to die with the disease than from it.”

HU is a type of chemotherapy used to treat MPNs and other forms of cancers. There are also targeted drugs and immunosuppressive medications which may be used to treat ET as well.

Reading through previous posts it looks as though you have been taking HU since last summer. How has it been working for you? Have your platelet levels dropped to normal? Are you experiencing any side effects?

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Replies to "According to the Leukemia and Lymphoma Society and by the opinion of most doctors in the..."

Thank you for your answer. It's true they are blood cancers, although they can be slow yet progressive to develop. Because you can live a long life with these blood cancers with treatment, some people think they are merely conditions, but they are not. It's good to take the diagnosis seriously as a result. I had family members tell me unsolicited that I should not worry because I really don't have cancer. Having read through the posts, I'm feeling a bit better about taking the HU although I have not started yet. I'm having blood work done in a week and then will know what my platelet levels are, and how much they might have gone up, and then I will start. I have scheduled a visit at the mayo clinic for a second opinion, first available was late May. Ahead of my visit, I'm trying to prepare by formulating questions. If you have any suggestions, I would love to know.