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ET progression if all blood cells are increasing?

Blood Cancers & Disorders | Last Active: Apr 1 6:59pm | Replies (20)
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@lea123

Thanks,
Not sure about my Dr. It has been a trend since Dec. with other cell types increasing but platelets were up and down, though they are increasing the last one. Shortness of breath concerning. Not sure 1000 mg total more a week will have an effect, not checking for 4 weeks. This was sudden since Dec. with dramatic increases in the wbc, rbd and others, never have been in past 3 years and though ET was mainly platelets. Unless transitioning to something else. Will wait and see, I guess ER if shortness of breath worsens. No back pain so wouldn't think an embolism. Did make appt. with my initial Hopkins Dr. in DC that does a lot of research but won't see him until May 5th.

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Replies to "Thanks, Not sure about my Dr. It has been a trend since Dec. with other cell..."
janemc | @janemc | Mar 22 6:36am

lea123, please ask your doctor about the shortness of breath you are experiencing. Breathing issues are really scary.

But there could be a simple explanation. Congestion may be part of your ET. Not only do we have too many platelets, they're misshapen -- to a degree that may signal "foreign body" and trigger our histamine reaction!

Your doctor may approve your taking a daily antihistamine to ease your breathing.

This brilliant advice was shared on this forum by nohrt4me, and it has made my life so much easier! With my oncologist's approval, I take an antihistamine every morning.

I am really sorry for the stressful time you're having.

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nohrt4me | @nohrt4me | Mar 23 9:30am

I think shortness of breath warrants at least a call to the doc, and I don't think urgent care/ER would be out of line, since we are all at heightened risk for clots.

Claratin helps allergy-type symptoms of ET, but if you are having trouble breathing that, to me, would be something I would want checked out.

Please keep us apprised!

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hudson2019 | @hudson2019 | Mar 30 10:50am

The Shortness of Breath is Alarming Do you Have Heart Racing Did you have a Bone Marrow Biopsy Done

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