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HCM-ers: Introduce yourself or just say hi

Hypertrophic Cardiomyopathy (HCM) | Last Active: Mar 24 9:34am | Replies (954)
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@wellgirl

Thank you for your thoughtful reply. It's just so good to be able to comunicate with people who know what I'm talking about.
I had the echo and cardiac MRI and was diagnosed with HCM. I am 69. I still have to be tested by a cardiovascular genetist however to confirm the diagnosis. It's very helpful that you told me that the gene doesn't necessarily show up. I checked out the Hypertrophic Cardiomyopathy Association website and found it very helpful. That's interesting about your daughter also carrying it. I don't have children so that isn't an issue for me. What brought you to a cardiologist in the first place? I had shortness of breath and heart palpitations.
I'm taking a beta blocker right now and have bad days and good days.
Many thanks for replying to me.

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Replies to "Thank you for your thoughtful reply. It's just so good to be able to comunicate with..."
emo44 | @emo44 | Mar 21 3:10pm

My HCM was diagnosed after I asked my primary provider to check my thyroid levels as I was having a lot of palpatations and thought perhaps my thyroid meds needed increased. Thyroid was fine so she ordered an ekg which was abnormal and then an echo and then an MRI. I have not seen a local cardiologist because it takes so long to get in that I already had an appointment at Mayo in Rochester before I heard from a local doctor. I don't know where you live, but the Hypertrophic Cardiologist Association, the American Heart Association, and the American College of Cardiology all recommend that an HCM patient should seek care at a Center of Excellence with an HCM clinic which see a large volume of HCM patients. As I stated I see a cardiologist at Mayo Clinic and feel fortunate to do so. About six months into my treatment I developed persistent Afib which is now under control thanks to my doctors at Mayo. It is well worth travel time to find a Center of Excellence.

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