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DiscussionHCM-ers: Introduce yourself or just say hi
Hypertrophic Cardiomyopathy (HCM) | Last Active: Mar 24 9:34am | Replies (954)Comment receiving replies
Replies to "Hi, After five months of being told my swollen ankles, shortness of breath and heart palpitations..."
Hi @wellgirl
HCM is always or almost always genetic. It can be genetic without a gene showing up on genetic test as in my case. Imagine my surprise when I was diagnosed with Apical HCM at the age of 78. I also do not have high blood pressure or high cholesterol. This is not a disease that is caused by lifestyle. It is just there. My genetic test did not show the gene that caused it. All genes are not known at this time. However, when my children started being screened for HCM, it was found that one of my daughters did indeed have it. An echocardiogram and a cardiac MRI are the best tests to confirm if you have HCM. Check out the Hypertrophic Cardiomyopathy Association website. They have lots of good information. And, if you join, you will have an intake phone call which is a great help. Good luck.