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@wellgirl

Hi,
After five months of being told my swollen ankles, shortness of breath and heart palpitations were nothing. My PCP wasn't saying it, but I think he thought it was having panic attacks. I pointed out that swollen ankles weren't caused by panic attacks. He replied, "Anything can be psychological. It starts in your brain. " Fortunately, I have a friend who is a doctor and he told me I needed a cardiologist. I was diagnosed with HCM in November. I'm supposed to have the genetic test in June but the cardiologist said she was certain I have HCM. I've been on a beta blocker and diuretic and am doing better but this is all after cancer treatment and I am feeling blindsided by the heart disease. It seems to have come out of nowhere. I did not have high cholesterol or blood pressure. There was nothing to indicate I might have heart disease. Could this have been triggered by radiation and chemo? Right now I have good days and bad days. It's just good to see what others are experiencing.

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Replies to "Hi, After five months of being told my swollen ankles, shortness of breath and heart palpitations..."

Hi @wellgirl
HCM is always or almost always genetic. It can be genetic without a gene showing up on genetic test as in my case. Imagine my surprise when I was diagnosed with Apical HCM at the age of 78. I also do not have high blood pressure or high cholesterol. This is not a disease that is caused by lifestyle. It is just there. My genetic test did not show the gene that caused it. All genes are not known at this time. However, when my children started being screened for HCM, it was found that one of my daughters did indeed have it. An echocardiogram and a cardiac MRI are the best tests to confirm if you have HCM. Check out the Hypertrophic Cardiomyopathy Association website. They have lots of good information. And, if you join, you will have an intake phone call which is a great help. Good luck.