Pancreatic Cancer Group: Introduce yourself and connect with others

There are two types of pancreatic cancer: acinar cell and ductal cell. I have acinar cell and was told the CA19-9 test was an unreliable indicator with this type. Thank you for your time.

Thank you for your information

Jeeplewis thank you for your support and information

Hello. My daughter has pancreatic cancer. She had a whipple in Oct 2024 for continued blocked duct and that is when cancer was found it was staged at 2b. Her recovery from the Whipple was remarkably smooth. Once she started chemo, the journey has been hard. She has been hospitalized numerous times- for sepsis and for pancreatitis. It seems like every time she is hospitalized is a step backwards.
It is hard as a parent to be supportive without being intrusive- although I have stepped over that line. Anyone else in a similar situation?

My wife hema age 43 pancreas cancer 4 th stage 2023 Aug after chemo trips 8 cycle again 6 cycle tablet, again 3 cycle chemo trips 21 days gap last time loose motion,mouth infection so no eating only jouse body very tired and weakness. Daily vitamin tablet pain relief tablet paracetamol 650 mg . please any other treatment

I was diagnosed with pancreatic cancer in May 2022. I underwent 10 rounds of chemotherapy and 15 radiation treatments before having the Whipple procedure in February 2023. During the surgery, they removed the head of my pancreas, part of my stomach, and part of my small intestine.

Fast forward to January 2024, the Signatera blood test detected cancer, so I was put on oral chemotherapy. After nine months of treatment, the test came back negative for cancer, and I stopped oral chemo.

On October 24, I began experiencing debilitating pain. Initial scans showed nothing, but four weeks later, while traveling to New York, I was hospitalized, and they confirmed a mass. After returning home, I had a PET scan, and on February 4, 2025, I started chemotherapy again. The disease has returned to the head of my pancreas.

The current plan is to continue chemo and, God willing, proceed with surgery to remove the disease. However, it is complicated because the cancer has wrapped itself around a blood vessel. The plan also includes radiation during surgery and post-surgery.

In reading your post, I’m confused as you say you had the Whipple and now you have recurrence in the head. The Whipple resects the head of the pancreas and the remnant pancreas consisting of the body and tail are attached to the jejunum. Did you have a distal pancreatectomy (tail) and now recurrence is in the head or is the recurrence in the body that was attached to the intestine as part of the Whipple?

I had the Whipple, they removed the head of my pancreas’s, part of my stomach and small intestine. The disease came back where in the space where the head of the pancreas was.