Uterine cancer: Anyone have pain months after complete hysterectomy?

Posted by jjevitts @jjevitts, Apr 23, 2023

I’m 67 and last July had a complete hysterectomy and was diagnosed with stage 1B endometrial cancer. I had brachytherapy as preventative treatment. A few months ago I began experience pain, almost like a pulled muscle in the right hip, lower pelvic region. Wondering if anyone else has experienced this?

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@maesuai

It seems to come and go and it started a couple of weeks ago. She finally brought it up with me the other day as it seemed to become somewhat worse and she said she did not want to worry me. Just guessing but it seems to mostly be around the line of incision so maybe it's related to scarring? In any case, we will bring it up and I will encourage her to document when she feels it and any other observations. I believe you were asking if I attend appointments with her. Yes, I attend pretty much every appointment.

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@maesuai It's great that you can go to these appointments with your wife. In my experience it's important to have another "set of ears" to listen to the medical provider and to take notes. When I'm the patient I can get somewhat anxious and rattled so I'm grateful that my husband comes to appointments with me. We can then discuss what we both heard.

It's good that your wife finally shared what she's experiencing with you. I get that she doesn't want to worry you. I know that feeling but I'm thinking that she would want to know if this was you?

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@naturegirl5

@maesuai It's great that you can go to these appointments with your wife. In my experience it's important to have another "set of ears" to listen to the medical provider and to take notes. When I'm the patient I can get somewhat anxious and rattled so I'm grateful that my husband comes to appointments with me. We can then discuss what we both heard.

It's good that your wife finally shared what she's experiencing with you. I get that she doesn't want to worry you. I know that feeling but I'm thinking that she would want to know if this was you?

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She had a lumpectomy about 10 days ago which luckily turned out to be just abnormal but not yet cancerous. Back to pelvis/abdomen CT on Monday and Lynparza. She has new labs and meet with oncologist as well so hopefully things will be still on track.

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@maesuai

She had a lumpectomy about 10 days ago which luckily turned out to be just abnormal but not yet cancerous. Back to pelvis/abdomen CT on Monday and Lynparza. She has new labs and meet with oncologist as well so hopefully things will be still on track.

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@maesuai That is very encouraging news about the lumpectomy. I do hope that the CT next week and her new labs will yield helpful information. And yes, I hope that everything is back on track as you said when she meets with her oncologist next week. If I have the timing right, your wife met with her oncologist a few weeks ago? Is that right. Did that appointment with her oncologist give her any information about the pain she was experiencing?

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@naturegirl5

@maesuai That is very encouraging news about the lumpectomy. I do hope that the CT next week and her new labs will yield helpful information. And yes, I hope that everything is back on track as you said when she meets with her oncologist next week. If I have the timing right, your wife met with her oncologist a few weeks ago? Is that right. Did that appointment with her oncologist give her any information about the pain she was experiencing?

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Labs turned out well - slightly low Hemoglobin but otherwise looked good. Met with oncologist Monday and she thought it was reasonable that her abdominal pain might be adhesions but they are not visible on the CT which also was fine. All good news this time.

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@maesuai

Labs turned out well - slightly low Hemoglobin but otherwise looked good. Met with oncologist Monday and she thought it was reasonable that her abdominal pain might be adhesions but they are not visible on the CT which also was fine. All good news this time.

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@maesuai Thank you for sharing this good news.

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@jjevitts

Hi, I had a complete hysterectomy for endometrial cancer 8 months ago. I’ve been feeling great until recently have had a burning, almost like a pulled muscle around my hip. Just wondering if anyone else has experienced this.

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could it be something else. i have hip osteoarthritis that feels like what you describe

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