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How do I deal with my husband? Transplant patient changed demeanor
Transplants | Last Active: Mar 31 12:08pm | Replies (32)Comment receiving replies
@1spousesupport, I have viewed this discussion, and am thankful for all of the support that you are receiving from other member. I am also a transplant recipient with a spouse tho has been at my side throughout the entire transplant journey. I am fully aware of all that it entails, physically and emotionally, for both patient and care giver.
I am concerned that this has been going on for 3 years. I am also aware that the trauma involved in any major medical event can result in a change in behavior. And I have seen first hand, in a trauma situation, how counseling along with coordinated prescription medication can make a huge improvement. In this particular situation, the patient denied counseling at first, but later made own decision to pursue it - and happy they did.
I would encourage you to talk with your own primary care doctor about this situation, and ask his guidance in moving forward. They shouild be able to provide resources to consider.
Is husband still followed by his transplant team? Do you attend appointments with him? Do they know about his extreme behavior?
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His transplant coordinator talks with him and it's not when I am present. He will not let me attend his appointment anymore. From what I see he only goes for labs once a month and xray. I believe twice a year. Since the first year of the his transplant I have not been apart and that's because he do not want me to. I do not know if he is sharing his behavior with them. I do know I mentioned it to his doctor when he went to the restroom and she asked him how was his moons and he was not truful about. Since that visit he do not share with me any of his concerns or discussions with his transplant coordinator. Nor medication changes, nothing! I do take a picture of his meds to try and keep updated with those. I tried being apart and supportive, he say they are not talking to me, but him and he can answer and ask his own questions. He says I'm not a child, I don't need you to act like you're my mother. My hands are tired. He has completely shut me out of the loop. The only time I am able to be apart is when it's time to take a trip to the emergency room, but that has not been in a long time.