Anti phospholipid antibody syndrome

My APS was diagnosed after I had a CRVO in my right eye. This occurred two weeks after I had Covid and 4 weeks after I had the 2nd booster in 2022. After what I have learned from multiple doctors, the vaccine or Covid didn't cause APS, but it most likely was the trigger to cause my first clotting event.

I have also been told by my Mayo doctor not to take any more MRNA vaccines due to their increased clotting risks.

I don't understand all the vaccine back and forth? My Drs told me to get the vaccines bc of my clotting factors (occluded MCA and ulnar artery) years before COVID.

I was diagnosed with APS right after Covid. I was told that in my particular case, the clotting mechanism related to immune globulin mu and cardiolipin mu while Covid clotting relates to immune globulin alpha. It might be worth getting the details of the test results. There at least 3 different sets of potential clotting issues and some are more benign than others. Also results can vary over time.

The odd thing about this, in my view, is that since no one had tested me in recent times for APS or lupus, I might have had APS without knowing it for years.

No MD has ever suggested avoiding the Covid vaccines. I have had several Covid shots since the diagnosis with no response other than the usual fatigue and aching arm.

I had the Covid vaccine and a booster. I just had my second Antiphospholipid antibody test after 12 weeks and the numbers just keep getting worse. I have not had any clots that I know of. I do have headaches every day, constant joint and muscle pain, the lacy rash, and muscle uncontrollable movements that cause my arms, legs, body and head to jerk.As far as I know there is no connection to the Covid vaccine. My hematologist has not mentioned it either. I have been on low dose aspirin since the initial positive test. Go back to the Dr. Tuesday to see what’s the next step. Anybody else had this without experiencing clots. What did they do for you?